Privacy Policy and Disclaimer

Privacy Notice

At the Cystic Fibrosis Trust we are committed to protecting your privacy. All information we hold concerning you as an individual will be held and processed by the Cystic Fibrosis Trust strictly in accordance with the provisions of the Data Protection Act 1998.

Only data which has been voluntarily provided will be held and such data will only be used by the Cystic Fibrosis Trust to administer our relationship with you in connection with our charitable activities, aims and related purposes. We will not, without your consent, supply your name and address to any third party except where (1) such transfer is a necessary part of the activities that we undertake, or (2) we are required to do so by law.

If you have indicated that you are interested in receiving regular information about the Trust's services and activities, we will send you communications by post or electronically. In addition, we may send you direct mail that we feel may be of interest to you.

The nature of Trust's work often requires us to collect the information of persons under the age of 16 to facilitate either our support objectives or because they wish to take part in an event organised by the Cystic Fibrosis Trust. Any person under the age of 16 who wishes to take part in such an event must obtain consent in the form of a signature from their parent/guardian on the registration document.

The Cystic Fibrosis Trust does not send marketing materials to anyone under the age of 16. However, in the case of events, we may occasionally send specifically targeted information about events to those of the appropriate age. If you do not wish your child's details to be used in this way or have any questions, please contact donationssupport@cftrust.org.uk or call 020 8464 7211.

We do not sell or rent user information to anyone. We may, from time to time, use our publications, and their inserts, to bring to your attention products/services from our partners that we feel may be of interest to you including the range of products available from our trading company CF Merchandising Ltd.

If you use our website and are asked for personal information at any point, you are only sharing that information with the Cystic Fibrosis Trust alone, unless otherwise stated. For example, when you are using our secure online donation pages you are going through our partner company Justgiving Foundation and the information you give, such as your credit card number and contact information, is provided so that the transaction can take place.

The Trust's website, like many websites, uses cookies in order to provide a more personalized web service. A cookie is a text-only string of information that we pass to your computer's hard disk through your web browser so that our website can remember you. Cookies cannot be used by themselves to identify you. A cookie will typically contain the name of the domain from which the cookie has come, the "lifetime" of the cookie, and a value, which is usually a randomly generated unique number. In addition to "session cookies" which do not remain active after you leave our site, our "Meeting Point" forum uses cookies which store information between your visits to facilitate logging-on to the forum again. You can refuse cookies but you may not be able to use all the interactive features of our website. For more information about cookies, please see www.allaboutcookies.org.

The accuracy of your information is important to us. If you change your address or believe any of the other information we hold concerning you is out of date, please advise us at donationssupport@cftrust.org.uk or write to the Cystic Fibrosis Trust, 11 London Road, Bromley. Kent BR1 1BY.

As an individual, you have a right under the Data Protection Act 1998 to obtain information from us, including a description of the data that we hold on you. For more information about this please contact the Data Protection Compliance Officer, Cystic Fibrosis Trust, 11 London Road, Bromley. Kent BR1 1BY.

Disclaimer

All information contained on this site is intended for general purposes only. It is not a substitute for professional medical advice or a medical examination. Always seek the advice of your consultant, GP, or other qualified health professional before starting any new treatment. Medical information changes rapidly and while the Cystic Fibrosis Trust make efforts to update the content on the site, some information may be out of date. Remember to always seek the opinion of a medical doctor.

Confidentiality

We take every measure available to protect the confidentiality of our users. Your enquiry may appear on the site so the answers can help other people as well. In this eventuality any names or personal details will be changed to maintain confidentiality. Please remember that your computer stores copies of outgoing mail. To keep your message confidential from others who may use your computer delete the copy in your sent items folder and check that our address has not been stored in the address box on your computer. If you do not want to use your usual email address for the purposes of this query, you could choose a free web based Email address such as Hotmail, Excite, Yahoo or Netscape.

Cystic Fibrosis Trust
Registered Office: 11 London Road, Bromley, Kent BR1 1BY
CF Merchandising Ltd
VAT No. 205326206