4row4CF 20.12.07
Four Met Police officers are currently rowing across the Atlantic to raise money for CF. The adventurous team have left their families behind for Christmas to row over 2,500 nautical miles from La Gomera in Tenerife to Antigua in the West Indies as part of the 2007 Woodvale Atlantic Rowing Race.

Southern Christmas Raffle 20.12.07
The southern region Christmas raffle was drawn on 19 December 2007. The winners were:
£1,000 - Miss N Bashir, Hertfordshire
Sony PSP Console - S Evans, Surrey
His and Hers Sekonda watches - J Hurlow, Wales
Weekend travel luggage - Ms M Uttley, Berkshire
Harrods Hamper - T Halliday, London
Breville Bread Maker - G Huxter, Dorset

RBS/Daily Mail Children's Charity Awards 13.12.07
We are delighted to announce that due to all the votes you cast we have made the shortlist of 10 charities going forward for a further vote to win £100,000!!! We have already been awarded £10,000 and we are featured today in the Daily Mail with the other 9 charities. We now need you votes again to secure the big prize so please email cystic@dmail.entries.co.uk or call 0905 197 0048. Voting will close on Sunday night - so get voting now!

News on prescription charges in Scotland 05.12.07
People who suffer from chronic or long-term conditions in Scotland will benefit from a cut of more than 50 per cent in the cost of pre-payment certificates, from £98.70 a year to £48, next April, with further cuts of £10 a year until abolition in 2011. Read more.

The Lawyer Magazine - Vote for the CF Trust 20.11.07
Please vote for the CF Trust to become one of The Lawyer Magazine's chosen charities. This would bring us £120,000 over 3 years!

Get voting now!

Help us win £100K! 14.11.07
RBS are giving away £1m to Children's Charities this Christmas. 90 charities will win £10,000 and one lucky charity will win the top prize of £100,000. Email charity@dmail.entries.co.uk describing in a few sentences why the CF Trust should win the £100K, but mention children! Close date for entries is Thursday 29 Nov.

Alternatively you can write to:-
RBS Charity campaign
PO Box 241
Alton
Hants
GU34 9BE

What can science do for me? 09.11.07
This new documentary follows singer Ian Tucker, who has CF, as he meets scientists to find out more about research in Cystic Fibrosis. It will be screened throughout the week on Community Channel, starting 29 Nov. Find out viewing times and more information.

First ever Santa Run at Old Trafford! 06.11.07
Old Trafford will be an alternative sea of red this December as Man U invite you to take part in a Santa Run to raise funds for two of their partner charities, the Cystic Fibrosis Trust and Francis House Hospice. The top fundraiser wins a pair of signed Cristiano Ronaldo boots! Find out more.

Transplants at Papworth 02.11.07
You may have read or seen the news this morning that routine heart transplants have been suspended at Papworth Hospital after a rise in the early deaths of patients. We would like to reassure you that this suspension does not affect double lung transplants, which most people with Cystic Fibrosis have. If you do have any concerns, then do not hesitate to contact your CF team or your contact at Papworth Hospital.

British Sausage Week 15-21 October 2007
The Cystic Fibrosis Trust is the official charity of British Sausage Week. Click here to find out more about how you can help turn bangers into cash!

Newborn Screening for CF 15.10.07
We are pleased to announce that all babies in England will now be offered screening for Cystic Fibrosis at birth. Click here to visit the UK Newborn Screening Programme Centre.

Congratulations Professor Sir Martin Evans 08.10.07
The Cystic Fibrosis Trust is delighted that Professor Sir Martin Evans has jointly won the Nobel Prize in Physiology or Medicine 2007 and wants to add its congratulations on this great achievement.

Professor Evans' groundbreaking work on gene targeting led to the creation of mouse models for Cystic Fibrosis, which have been very important in our work to find clinically effective gene therapy for the lungs of people with Cystic Fibrosis.

Further details on this prestigious award can be found at the Nobel Prize website and on the BBC.

Postal Delays 04.10.07
We want to let you know that we value all of your wonderful fundraising, so please bear with us during the postal dispute and we'll be back in touch as soon as possible

Northern Ireland Opportunity 27.09.07

Do you know someone who works for the emergency services in Northern Ireland? Staff members of the Police, Fire Service, Ambulance Service and HMS Coastguard are currently choosing a charity to support for 2008.

We have been shortlisted to the last three and staff now have the opportunity to vote for one of the three. We need your help!

Please can you contact anyone you know who works in the emergency services in Northern Ireland and ask or encourage them and their colleagues to vote for the Cystic Fibrosis Trust.

There are two weeks in which they can cast their vote.

Thank you.

Make sure you get your flu jab! 27.09.07
People with CF should be immunised against flu each autumn. The vaccine is available from your GP practice. To find out more about getting a flu jab visit the NHS website or call NHS Direct on 0845 4647.

Government task force to explore presumed consent for organ donation 20.09.07
Health Secretary Alan Johnson has today asked the organ donation taskforce to explore whether all adults should be automatically included on the organ donor register.

Joshua Jones 18.09.07
CF adult Joshua Jones, a talented musician and singer, releases his debut single 'Kilimanjaro' next Monday on the Sprint music label, distributed by Universal. It is available as a CD, a Picture Disc 7" and a digital download. The single is from the album 'Seize the Day', released on October 1st. Ten per cent of all Josh's future music earnings are pledged to the Cystic Fibrosis Trust and you can find out more about Joshua here.

Kelli wins! 10.09.07
Scottish teenager Kelli Gallacher, who has CF, won the Big Hearted Scotland Child of the Year award on Friday. Congratulations Kelli! Click here to watch the awards.

CF Trust teams up with Rangers 17.08.07
We are delighted to announce that we have been chosen as one of Rangers Charity Foundation's three nominated charities for the 2007/8 season. The aim of the partnership is to raise money to buy new nebulisers for people with CF in Scotland. For more information please contact our Fundraising Manager for Scotland, June Ross.

Manchester United announce new UK charity partnerships 30.07.07
The Cystic Fibrosis Trust is delighted to announce that we have been named as one of Manchester United's charity partners. Sarah Guthrie, Director of Fundraising at the CF Trust said '"We are thrilled to be working with Manchester United for the next three years to raise awareness of Cystic Fibrosis and to raise money for vital tests of potentially life saving gene therapy. Manchester United's support will give a huge boost to the families living with Cystic Fibrosis across the UK." Click here to read the press release from Manchester United.

Public consultation on prescription charges in England 26.07.07
Following their internal review, the Government have decided to hold a consultation in the autumn so that the public can contribute their views on prescription charges. A further statement will be made after summer recess giving details of the consultation.

Chief Medical Officer urges organ donor opt-out 17.07.07
The chief medical officer Sir Liam Donaldson says everyone should be viewed as an organ donor when they die unless they have requested not to be. Click here to read more.

Newborn screening 03.07.07
As of July 2 2007, all newborn babies will be offered screening for Cystic Fibrosis in Greater London, Kent and Medway, Surrey and Sussex, and Beds, Herts and Essex.

Newborn screening 22.06.07
As of Friday June 1 2007, all newborn babies will be offered screening for cystic fibrosis in Wessex, (Bath, Swindon, down to Dorchester and across Hampshire to the West Sussex border), Guernsey and babies born to HM Forces families. Read more.

Prescription charges in Scotland 20.06.07
The Scottish Executive is to abolish prescription charges for chronically ill patients from next April. Click here to find out more.

Breathing Life Awards 05.06.07
Claire Sweeney and Dr David Bull hosted the 12^th annual star studded Breathing Life Awards ceremony on May 31. Click here to see the list of this year's winners.

Nicky's Whisper Challenge Trophy Football Match 24.05.07
Former footballers Mark Bright and Jason Cundy along with celebrities David Baddiel and Angus Deayton won 8-2 in a match against MPs held at Stamford Bridge on Thursday 24 May. The match aimed to raise awareness and funds for Cystic Fibrosis, the UK's most common life-threatening inherited disease.

London Marathon 2007 27.04.07
We would like to offer congratulations to all the Team CF runners who trained hard, ran hard and raised lots of money at this year's London Marathon, which took place Sunday 22 April.

Special mention should go to the seven adults with Cystic Fibrosis who ran. They included:

James Burke: 6hours 35 minutes
Ciaran Devine: 5 hours 48 minutes
Rob Law: 4 hours 17 minutes
Simon Stothard: 3 hours 50 minutes
Julian Sykes: 3 hours 35 minutes
Marc Prosser: 6 hours 48 minutes.

Prescription charges petition 24.04.07
Sign the petition to support the abolition of prescription charges for adults with Cystic Fibrosis.

PTC 124 - Cystic Fibrosis Trust response 23.04.07
Whilst the Cystic Fibrosis Trust welcomes this development it is important to note it will not help the vast majority of people with Cystic Fibrosis (CF) in the UK. It offers real hope of significant improvement to a small percentage of people with CF in the UK and others in the world who have a particular mutation, sometimes called a 'stop' mutation or a nonsense mutation. However over 90% of those with CF in the UK do not have this mutation. Most, over 75%, have the mutation known as Delta F508, which would not be responsive to this drug.

The Cystic Fibrosis Trust has committed over £30 million into a gene therapy research programme which is designed to address the genetic fault which causes CF, irrespective of which mutation it is. Clinical trials for the gene therapy product, which has been developed by the Gene Therapy Consortium, will start later this year. The Gene Therapy Consortium comprises over 70 scientists, based in Edinburgh, Oxford and London, working as a team.

The article can be read in The Times and The Herald.

BUPA Great Wales Run to replace Great Welsh Run 13.04.07
We are thrilled to announce that we will be working alongside Nova International on a brand new 10k run for Wales. Click here to find out more.

Vernon Kay's Gameshow Marathon 05.04.07
One of our patrons, Ben Shephard, is taking part in Vernon Kay's Gameshow Marathon on ITV1 which starts this Saturday at 7.40pm. Six celebrity contestants compete in a series-long tournament, receiving a donation to their favourite charity for their participation. We are delighted to be Ben's chosen charity.

Wales goes smokefree 02.04.07
A ban on smoking in enclosed public places has come into force in Wales. Click here to find out more.

Prescription charges abolished in Wales 01.04.07
Patients in Wales will no longer have to pay prescription charges. Click here to find out more.

Prescription charges 26.03.07
John Hayes MP presented a private members bill to parliament which would ensure people with Cystic Fibrosis are exempt from paying prescription charges. The bill was read a second time on Friday 23 March. Health Minister Rosie Winterton said the Government was already carrying out a review into prescription charges, which is due to report in the summer, and that it would be wrong to "pick out one particular condition" and change policy before the review is over.

Mobiles in hospitals 15.03.07
Hospitals in England which currently ban doctors and patients from using mobile phones have no reason to do so, the government has said. Read more

Newborn screening for CF in Cheshire and Merseyside 01.02.07
From February 1 babies born in Cheshire and Merseyside will be screened for Cystic Fibrosis.

Newborn screening for CF in the South West 08.01.07
From today all babies born in Cornwall and the Isles of Scilly, Devon, Somerset, Gloucestershire, North Wiltshire and Bristol will be screened for cystic fibrosis. Click here for a press release.

Joshua Jones 21.12.06
CF adult Joshua Jones has launched his first single. The song, Kilimanjaro, is available to download on iTunes, with a share of sales going to the Cystic Fibrosis Trust. He also has a video on You Tube.

New website 18.12.06
Welcome to our new website - we hope you like it. The website is an ongoing project and more information will be added over the coming months. Whilst we have taken every care to check all the links and information on this site if you notice any problems please email website@cftrust.org.uk

Blue Peter 18.12.06
Watch Blue Peter on Tuesday 19 December at 5pm on BBC1 to see someone's Christmas wish come true!

England to go smokefree in July 2007 01.12.06
All enclosed public places and workplaces will become smokefree enviroments from 6am, 1st July 2007, Health Secretary Patricia Hewitt announced today. Click here to read the press release from the Department of Health.