Gordon and Sarah Brown's baby son diagnosed with Cystic Fibrosis 30.11.06
Whilst it usually comes as a shock to families to learn that they have a child with Cystic Fibrosis, the Cystic Fibrosis Trust is always keen to reassure them that the prospects for children born today with Cystic Fibrosis are very positive. Treatments are infinitely better than they used to be, and with current research there is every expectation that there will be considerable improvements in the care of those with Cystic Fibrosis in the not too distant future.

European CF Day 20.11.06
The Cystic Fibrosis Trust is lending its support to the first ever European Cystic Fibrosis Awareness Day on 21 November organised by CF Europe.

A Child Against All Odds 17.11.06
A Child Against All Odds follows the emotional stories of people undergoing fertility treatment and the science that makes parenthood possible for those affected by infertility. The series features a programme on male infertility and CF on Tuesday 28 November at 9pm on BBC One.

IVF and PGD (preimplantation genetic diagnosis) 13.11.06
Guy's and St Thomas' NHS Foundation Trust celebrates the arrival of the UK's first PGH babies.

Newborn Screening 01.11.06
Newborn screening for CF has been introduced in the West Midlands and in the North East including parts of Cumbria. Click here for the website of the UK Newborn Screening Programme Centre.

Joe Cole announced as a new celebrity patron of the Cystic Fibrosis Trust 28.10.06

ITV Meridian 17.11.06
ITV Meridian is running a series of reports next week on CF - if you live in the region watch Meridian Tonight on Wednesday 22 and Friday 24 from 6pm.

Make sure you get your flu jab! 2.10.06
People with CF should be immunised against flu each autumn. The vaccine is available from your GP practice. To find out more about getting a flu jab visit www.nhsdirect.nhs.uk or www.dh.gov.uk, or call NHS Direct on 0845 4647.

designasausage.com support CF Trust in British Sausage Week. 14.09.06
Ever fancied making your own sausages? Well now you can; with every order over £20 placed on designasausage.com, £1 will be donated to the Cystic Fibrosis Trust. See their website for more details.

The X Factor 17.08.06
The new series of The X Factor starts on Saturday on ITV1. Chris Yates a PWCF from Bradford, sang for the judges at the Leeds audition - fingers crossed he makes the final 12!

Review of NHS Charges 18.07.06
National Health charges, including prescriptions, have been branded "a complete mess" by MPs. The Commons Health Select Committee says the Government should carry out a full scale review of the charges.

Smoking ban 17.07.06
Details of how England's ban on smoking in enclosed places will work have been published and put out to consultation. Health Minister Caroline Flint said the government would listen to people's views ahead of the ban, which is due to start next summer. The consultation period will run for 12 weeks, closing on 9 October 2006. Those who wish to submit their views can do so online at http://www.dh.gov.uk/consultations/liveconsultations or email smokefreeregulations@dh.gsi.gov.uk.

Commit to Get Fit Summer 2006 13.07.06
Commit to Get Fit is a national, trial-membership campaign run by the Fitness Industry Association. It is designed to help people all over the UK improve their lifestyle and well-being through advice, support and the opportunity to be more active, more often. The campaign is sponsored by BUPA and supported by the NHS. The Cystic Fibrosis Trust is the official charity of Commit to Get Fit 2006. Find out more at www.committogetfit.com

Growing Hope Rose 04.07.06
The Growing Hope rose, a deep red floribunda with a powerful fragrance, has been created especially to raise awareness of Cystic Fibrosis and funds for the Cystic Fibrosis Trust. The rose, launched at the Hampton Court Palace Flower Show by Charlie Dimmock, is the result of a partnership between growers World of Roses, and mum Catherine Upstone, who has a two year old daughter with Cystic Fibrosis. The roses can be purchased from World of Roses by mail order 08452 606888 or www.worldofroses.com. £2 from the sale of each rose will go directly to the Trust or £10 if you buy three roses. Thanks to everyone who voted for the Growing Hope rose in the BBC poll, to make it the most popular new bloom.

Breathing Life Award Winners 27.04.06
The Cystic Fibrosis Trust celebrated the outstanding achievements of 24 inspiring youngsters who have Cystic Fibrosis, the UK's most common life-threatening inherited disease. The 11th annual Breathing Life Awards sponsored by NEXT and BT was broadcast live on Life TV (Sky channel 137). Stars from the worlds of music, sport, screen and stage joined the charity to honour all the nominees who have shown great courage and determination despite battling on a daily basis with the symptoms of CF. Read more.

Unhealthy Britain isn't exercising enough 23.03.06
A survey released today by the Cystic Fibrosis Trust reveals that over 40 million people in Britain are not doing enough exercise and are putting their health at serious risk as a result. The results of the NOP survey have been released to coincide with the Big Bounce 2006, which is currently taking place at locations throughout the UK as part of CF Week. The Big Bounce is a nationwide campaign to get people fit through 'bouncing exercise', whilst raising funds for the Cystic Fibrosis Trust. Read more.

Comment on recent news stories regarding hypertonic saline solution 09.03.06
In patients with Cystic Fibrosis, inhalation of hypertonic saline produces a sustained acceleration of mucus clearance and improved lung function. This treatment may protect the lung from insults that reduce mucus clearance and produce lung disease. This treatment is already used by many people with CF in the UK; although the recent trial, reported in the New England Journal of Medicine, has confirmed the value of hypertonic saline solution in improving sputum clearance in people with CF. For more information please consult your doctor.

Live Life Then Give Life 09.03.06
The Live Life Then Give Life Campaign has been created by Emily Thackray and Emma Harris to raise awareness of organ donation and the chronic lack of organ donors in the UK. It aims to encourage people to show their support for organ donation by wearing one of the two T-shirts that have been produced especially for the campaign. Find out more at www.livelifethengivelife.co.uk

The Charity Million - New website aims to raise £1 million for the Cystic Fibrosis Trust 17.03.06
Coventry businessman Steve Dawson has launched a new website - www.TheCharityMillion.co.uk - which he hopes will raise £1 million for the Cystic Fibrosis Trust. The website launch coincides with the start of CF Week, the Cystic Fibrosis Trust's annual campaign which runs from the 18-26 March and aims to raise funds and awareness for the Cystic Fibrosis Trust.

Bird Flu 09.03.06
A lot of people are beginning to be concerned about bird flu, and how it will affect those with Cystic Fibrosis. More particularly, everyone is keen to know what they can do to help themselves. Please read this document and we will keep you updated as more information becomes available.

Review of Commissioning for National Health Service Specialised Services 15.02.06
In October 2005 Lord Warner, Minister of State for Health, announced a review of the NHS Commissioning arrangements in England for 35 Specialised Conditions, including Cystic Fibrosis. In January of this year The Cystic Fibrosis Trust entered a submission outlining the areas where they feel commissioning arrangements are currently inadequate.

Problems with Home Oxygen Service 15.02.06
The way oxygen is provided to people at home in England and Wales has changed. If you require oxygen urgently, the Department of Health has issued a new directive which means that patients can now request a repeat prescription (FP10) from their GP which can be dispensed at Pharmacies up until 31st March. To find out about the changes to your home oxygen service and for contact details of your new supplier please read the Home Oxygen document.

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