News Archive - 2005
ICAP Charity Day
At the end of 2005, the Cystic Fibrosis Trust benefited from the world renowned ICAP Charity Day. ICAP is the world's largest interdealer broker. Each year the company chooses a number of charities to support and all the profits from trading on their Charity Day are donated to the charities for specific projects. A record day of trading means that the Cystic Fibrosis Trust will receive £220,000 towards the clinical trials for gene therapy that are planned for 2007.
Cystic Fibrosis Trust celebrity patrons Jenny Agutter, David Seaman and Nancy Dell'Olio were on hand to encourage the brokers and join in the party atmosphere. Huge thanks to everyone at ICAP for a brilliant day and for the fantastic amount raised.
St. James's Palace Reception 11.10.05
The CF Trust held a reception at St. James's Palace in the presence of our patron HRH Princess Alexandra to commemorate our 40th anniversary.
Number of Organ Donor "Lifesavers" rises by 1 million
A million people have signed up to the NHS Organ Donor Register in less than 12 months. Their spectacular response to UK Transplant's "one million challenge" - launched last October to mark the register's 10th anniversary - means that the target has been reached well ahead of schedule.
More than 12.6 million "lifesavers" have now pledged to help someone else to live after their death by registering their wishes on the NHS Organ Donor Register.
The CF Trust would like to thank everyone who has signed up and we hope it will encourage even more people to add their name to the register.
Anyone can join the NHS Organ Donor Register by telephoning the Organ Donor Line on 0845 60 60 400 or by visiting www.uktransplant.org.uk
CF Trust announces new celebrity patrons
Four new celebrities have agreed to be patrons of The Cystic Fibrosis Trust. Former England goalkeeper David Seaman, author Bill Bryson, and former Olympic athletes Mark Richardson and Roger Black have all agreed to pledge their support to the CF Trust.
In addition the Trust has secured the continued patronage and commitment of Richard and Judy, Nancy Dell'Olio, Jenny Agutter, Ben Shephard, Matthew Wright and Dr David Bull
Meet Jenny Agutter 24.9.05
Book Signing at Kidderminster Severn Valley Railway Station, September 24th, 3-5pm.
Actress Jenny Agutter is celebrating the centenary of the story which made her a star. This year is the centenary of Edith Nesbit's timeless classic The Railway Children, an enchanting tale following the fortunes and adventures of Roberta, Peter and Phyllis after they move from London to a house near the railway line in the country.
The book was first published in 1905 and a hundred years on a unique new edition of the book, complete with illustrations, has been published by Silver Link Publishing. Jenny Agutter, who played the role of Roberta in the BBC's serialisation of the novel in 1967 and the subsequent 1970 film, has contributed a foreword to the book in exchange for a donation to the Cystic Fibrosis Trust.
She will be signing copies of the book at Kidderminster Severn Valley Railway Station on September 24th between 3 and 5pm. The book costs £16.99 and 35% of profits made from books sold on the day will go to the CF Trust.
Casualty at Holby City - Interactive
Casualty and Holby City joined forces for the first ever interactive episode presented by Prof Robert Winston. The episode was shown as part of the BBC's DoNation week, a series of programmes highlighting the issues surrounding transplants. In a special interactive edition of Casualty, viewers have the final say over which of two very different patients gets a much-needed transplant. The storyline features a patient with Cystic Fibrosis. The CF Trust had no involvement in the making of this programme.
Will I Still Love My Mum? 28.7.05
A hard-hitting documentary called Will I Still Love my Mum? was broadcast on Channel 4 at 9pm on Wednesday 3 August. It follows two ten-year-old girls with CF who are faced with the decision of whether or not to go on the transplant list.
Easier Treatment - Study 08.02.05
Research funded by the Cystic Fibrosis Trust has found that tobramycin taken once daily offers simpler home treatment and fewer side effects for children.
Research Contract with DoH
The Department of Health has announced it has signed a contract with the Cystic Fibrosis Trust and UK Cystic Fibrosis Gene Therapy Consortium, to support further essential gene therapy research. Health Minister Lord Warner announced on January 4th, 2005 that the Cystic Fibrosis Trust is one of two organisations benefiting from £2.5m to find a gene therapy cure for cystic fibrosis. The Institute of Child Health has also been awarded a contract and both organisations are working together on different but complementary strategies to maximise the likely benefits. The provision of £2.5million for Cystic Fibrosis was announced on 24th June, 2003 in the Genetics White Paper, "Our Inheritance, Our Future: Realising the potential of genetics in the NHS".

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