CF Trust Meeting Point

Message Boards for the CF Trust » Connect - Adults Message Board

Topic: Hello
Replies: 10   Pages: 1   Last Post: 18-Dec-2006 21:24 by: Oli

Reply to this Topic Reply to this Topic
Search Forum Search Forum

Back to Topic List Back to Topic List
Replies: 10   Pages: 1  
Burn

Posts: 27
Registered: 05-Nov-2006
Hello
Posted: 17-Dec-2006 15:33
  Reply

Thought I would let you know, I'm home YAY I'll explain more when I have a little more time. glad to be back though

Jacarr

Posts: 67
Registered: 13-Nov-2006
Re: Hello
Posted: 17-Dec-2006 16:19
  Reply

Welcome back

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006
Re: Hello
Posted: 17-Dec-2006 18:17
  Reply

yea. Welcome home for Christmas

sal

dawnypink

Posts: 39
From: North East
Registered: 06-Nov-2006
Re: Hello
Posted: 17-Dec-2006 19:36
  Reply

Yay Welcome back Burn

Dawny xxx

Burn

Posts: 27
Registered: 05-Nov-2006
Re: Hello
Posted: 18-Dec-2006 18:03
  Reply

Thanks for the welcom back

Well what has been happening to me the past 5 weeks. About 5 weeks ago I come home after going to my uncle’s funeral, and I was sitting down eating a late evening meal. Then after about 3 hours after the meal I got real bad pains in my side, I just though well another blockage so I left it, then next day it real hurt all the time not just now and then. This was a constant pain, I rang my consultant up and got some gastrographin 4 bottles but still the pain would not ease up. I was also due to get my port changed in a week, so I waited till then to go in because this was the only time they could fit me in for a new port, maybe I should have gone in sooner but I didn’t want to have to cancel my port. When I got to hospital the pain was really bad I got my new port then they scanned my belly there was a lot of fluid on my belly but they also noticed I had ruptured my spleen I was then given oramorph for the pain. I then started to run a temperature and my heart was beating at a constant 168 bpm. When I went to sleep my O2 levels were dropping to 84% so they put me on oxygen and IV’s. I started to get better after about 2-3 weeks I was then transferred to Birmingham QE liver unit. I had lots of test done, saw the liver coordinators, bloods taken, CT scan, ultrasound of my heart and lungs X-ray spoke to loads of doctors and yes had an assessment for my liver. The rupture of the spleen was caused because of the liver disease. They are confidant I will go on the liver transplant list if that is what I decide to do so. I knew this was coming but when someone comes into your room saying you need a liver transplant, and if you don’t get one in roughly 2 years you will die it’s a lot to take in. As you can imagine it’s been very emotional the past 5 weeks for my parents and myself, maybe more so for them. I’m confident I will decide to go on the list. Obviously my parents and I will need to talk more which we are going to do after Christmas. I’m glad I‘m home for Christmas. My spleen still hurts even after 5 weeks so I am glad they have given me lots of oramorph to take home. Well that’s it for the moment. Other than that thing seem to be ok.

I hope everyone else is well and looking after themselves

Shelbert

Posts: 70
From: Ayrshire
Registered: 08-Nov-2006
Re: Hello
Posted: 18-Dec-2006 18:29
  Reply

Hey Burn

I've never spoke to you before but i remember you from before the crash (of the forum that is) incase anyone starts to panic so welcome back.

You've had some time of it i've been reading, sorry to hear of your troubles, i can see why its been emotional. Its great to hear you might decide to go on list, obviously its not great you need a tx but its great your coping with it and feel good about going for it, i'm also on the tx list for some lungs, and your approach is best...positivity all way, works wonders.

Like you say once you've spoken to family once the festivities are over then you'll be sure in your mind.

I wish all you all the best in whatever you decide and if you ever fancy a chat or whatever details are on profile, if not take the best of care and have a great christmas.

Shelbert

Burn

Posts: 27
Registered: 05-Nov-2006
Re: Hello
Posted: 18-Dec-2006 18:46
  Reply

Thanks Shelbert

My parents are very supportive, so I know I will get the support I will need. It’s always nice to know I can talk to you lot as well, thank you. I really hope things go well with you, and you get some new lung ASAP thanks again for the kind words, means a lot.

Angel

Posts: 491
From: London
Registered: 17-Feb-2004
Re: Hello
Posted: 18-Dec-2006 18:53
  Reply

hey Burn,

So sorry to hear you have had such a rough time, hearing "that talk" is petrifying and opens up a huge number of questions, but also options too. I am sure you have lots of thinking to do over the next few weeks, if you want to chat at all please feel free to email me Take care and hope you are gearing up for a restful but sparkly christmas

Emmie

Posts: 34
Registered: 06-Nov-2006
Re: Hello
Posted: 18-Dec-2006 19:05
  Reply

Hi Burn
Just wanted to say I really feel for you having to go through all that and then hear you need to be listed for transplant very soon. I hope you manage to have a nice Xmas still though and that once you are on the list your new liver comes very soon.
Sending you a hug! xxxx

Burn

Posts: 27
Registered: 05-Nov-2006
Re: Hello
Posted: 18-Dec-2006 21:21
  Reply

Thanks Angel & Emmie

I’m still in the festive mood my mum and dad waited till I was home before they put the decorations up because I like putting them up. I was able to help where I could. I like all the lights they make me happy. Our plans are to have a fun and nice restful Christmas, and then start the discussion process after Christmas. No need upsetting our selves even more at such a nice festive season. There will be plenty of time for talks, anger, crying and all that soon enough. So for now I think we’ll try to put it to one side for the moment.

I hope you both have a great Christmas and that you both are well and healthy.

Oli

Posts: 201
From: Milton Keynes, England
Registered: 12-Feb-2004
Re: Hello
Posted: 18-Dec-2006 21:24
  Reply

Hey Burn,

Am glad to hear you're keeping really positive at the moment and enjoying the festivities as much as you can - it's definitely the best way to tackle things, without doubt.

I'm sorry you've had a rough time, but hopefully the New Year will bring New Goodness to your life and things will start to pick up.

Take care of yourself.