Message Boards for the CF Trust

Replies: 7 Pages: 1

lisa_h

Posts: 13
From: Nottingham
Registered: 19-Nov-2006

Organ donor registration
Posted: 15-Dec-2006 13:09

Reply

Hi,

Even though I have CF can i register to be an organ donor? I only have problems with my lung my digestive system isn't effected (as yet) I just feel like if I could help someone I would!!!

Lx

Darling

Posts: 731
From: Here
Registered: 06-Feb-2004

Re: Organ donor registration
Posted: 15-Dec-2006 13:17

Reply

Bit of a long shot this, but I'd ask the organ donation people

ClaireW

Posts: 3
Registered: 15-Dec-2006

Re: Organ donor registration
Posted: 15-Dec-2006 13:35

Reply

I am on it think the only thing they can take are my corneas but what the hell :0)

cupcake

Posts: 141
From: england
Registered: 02-Mar-2004

Re: Organ donor registration
Posted: 15-Dec-2006 13:46

Reply

I've wondered about this as I would like my daughter wcf to be a donor.

I think pwcf could donate their heart. I'm sure I read about a pwcf who had a lung and heart transplant even though their heart was ok (something to do with heart/lung being easier or safer than just lungs) and their healthy heart was donated to someone else.

I'd like my daughter wcf to be a donor of as many organs as possible, even if it was just for research or other medical purposes I would let them take what they needed. After all they wouldn't be needed by her and someone somewhere could be in desperate need of them......

DimBloke

Posts: 102
Registered: 11-Nov-2006

Re: Organ donor registration
Posted: 15-Dec-2006 13:49

Reply

Yeah you can still be a donor - having CF isn't a bar to being a donor. When you think about it, some people with CF who need lung transplants donate their heart to someone else and get new heart and lungs in return.

What organs can actually be used depends on a number of things such as whether you have diabetes, if you've been on high dosed steroids etc.

My view is if it came to retrieval then the docs can figure out what is recyclable. I'm on the register and so are all my family

lisa_h

Posts: 13
From: Nottingham
Registered: 19-Nov-2006

Re: Organ donor registration
Posted: 15-Dec-2006 15:16

Reply

Well I went on the web site and you can also donate your bones and skin. I'm going to register if some of you are!!
What about giving blood?

Lx

Angel

Posts: 491
From: London
Registered: 17-Feb-2004

Re: Organ donor registration
Posted: 15-Dec-2006 16:26

Reply

As Dimbloke said, no medical condition rules you out from being able to donate, although of course certain organs may not be suitable. As far as giving blood goes I was told I can't due to various medications but also now because I have received a blood transfusion.

SamT

Posts: 8
From: Suffolk
Registered: 05-Dec-2006

Re: Organ donor registration
Posted: 15-Dec-2006 18:27

Reply

I asked and definately corneas, some can donate kidneys, skin, also heart - especially if you get a heart/lung tx coz someone can get your heart. I regstered an bought a Tshirt saying 'I'd give you one' xxx