Message Boards for the CF Trust

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unhappy

Posts: 1
Registered: 15-Dec-2006

I'm really sorry, but .........
Posted: 15-Dec-2006 10:29

Reply

.......does the CF Trust really have to send us all a Christmas card?????

I am going to write to the Trust and request that they don't send me one next year as I realy feel that this is wasting our hard earned funds, not just the glossy coloured card, but also postage and man-power time.

Everyone who has a relation with CF does their very best to raise money for treatments and hopefully a cure. Every penny needs to go in the right direction surely?

Shadow

Posts: 12
From: Scotland
Registered: 13-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 10:41

Reply

I agree whole heartily, we got two sent to our house. Cost of all that posting must be huge it would definitely be better spent elsewhere.

maggsmcg

Posts: 60
From: Hemel Hempstead
Registered: 07-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 10:59

Reply

Totally agree! My opinion exactly.
However they will argue its for awareness, I will argue back that the people on the mailing list do not need to be made aware! I would rather that money be spent, for awareness, on a giant poster.

lmstepney

Posts: 31
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 12:33

Reply

We all agree that we'd like the money spent elsewhere. But, I'm sure a lot of people appreciate this gesture. It's recognition of support.

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 13:36

Reply

I'll add my name to that list. Also I don't need to be reminded about the nasties of cf at Christmas especially. tHESE DAYS ARE EMOTIONAL ENOUGH.

SAL

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 14:12

Reply

We have never been sent one!!! but i agree with you all that it's money that could be spent in other ways

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 14:28

Reply

We had one, and although I suppose in a way it's a way of saying thank you to the supporters, but I agree, I don't need extra reminders of CF, especially at Christmastime, and I find the begging letter offensive too, when we have done a lot for the Trust. I know they have to ask, but I do find it a bit tactless, when they know we are parents of children wcf.

Denise

Posts: 16
From: Bedfordshire
Registered: 08-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 16:24

Reply

Just thought I'd say I totally agree. We're all for encouraging awareness of CF but the Trust really shouldn't send parents/carers begging letters, I too find them unnecessary. Whilst I accept some may see it as a kind gesture, I would also prefer to see our hard earned funds spent more appropriately than on glossy Xmas cards.

D.

pinkgirl

Posts: 77
From: Ireland
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 16:41

Reply

Over here, we used to be sent a £10 (20?) voucher for a big department store at Christmas

I think that's only if you are under 18 though. Not sure...Anyway we were always delighted (for obvious reasons) but I see where you are coming from! x

cupcake

Posts: 141
From: england
Registered: 02-Mar-2004

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 16:54

Reply

I think a similar post to this came up a year or so back. At that time I think someone said that the trusts postage and printing costs were funded from a source outside of the charity, so their annual postage cost is the same whether they send 100 or 1000 letters. I could be wrong but I think thats how I remember it.

I haven't had a card this year, but wouldn't be offended or upset if I got one. If it costs them money I would rather the money be spent elsewhere on something more beneficial obviously, but I think it is a nice gesture and a way to thank everyone for their support over the year.

The thing that annoys me with the trusts mailings is when you get the letter reading along the lines of 'thank you for your regular donation of £***, would you like to increase it to £***' That really makes me mad and had it been a charity that wasn't so personal to me I'd have told them where to go and not made another donation. I think its incredibly rude to ask you to increase your monthly donations, and makes them seem ungrateful for the amount you give. If I could give more, and wanted to, then I would. A begging letter makes me want to stop altogether.

sunseasand

Posts: 74
Registered: 10-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 17:04

Reply

I think it would be much more appropriate it the cf trust just posted on this site a nice xmas card for all the parents and carers of someone with cf. I'm sure by sending us a xmas card it is wasting vital funds that they so need now with the gene therapy starting, and us anxious parents want every penny spent on finding a cure. It was a lovely gesture from the cf trust and i'm sure it was for support from them to us and to let us know that they really appreciate our funds. But please cf trust spend funding on research as we are so desperate for a cure. If and when there is a cure I for one will be sending the biggest xmas card to the cf trust. Thank you anyway to the cf trust for their thoughts. from sunseasand.

alibozo2

Posts: 13
From: sevenoaks
Registered: 11-Dec-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 20:46

Reply

I haven't had a card, but I have been really upset by some of the postings I have had in the past telling of some poor child who is really ill and asking for more donations. I am sorry but I know what it's like to have a child with CF and we do our best to raise money and all it does is make me cry!

karenl

Posts: 5
Registered: 29-Nov-2006

Re: I'm really sorry, but .........
Posted: 15-Dec-2006 21:09

Reply

hi

have just opened mine and quite agree that I'd rather not receive the card (not very christmassy) and I certainly get annoyed about the begging letters! Looking after a young one with CF is time consuming and costly enough without adding in all the additional stresses of other children, work and life in general!

I think that as the children have to have such a high fat diet then chocolate should be available on prescription together with wine for stress management!

Karen

tj

Posts: 33
From: Manchester
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 16-Dec-2006 13:08

Reply

I actually had three begging letters within one month, shortly after doing the hydro and other stuff!! Would happily sign a petition to reduce the number of begging letters but if the christmas cards are mass produced and are not wasting any funds then there quite harmless.

If they are amassing postage costs for the trust, then I would happily go without.

tineka

Dawn

Posts: 29
From: Worcestershire
Registered: 06-Nov-2006

Re: I'm really sorry, but .........
Posted: 16-Dec-2006 15:55

Reply

why dont they just say HAPPY XMAS TO EVERYONE on the website? Or does that cost money too?