trollydolly
Posts:
38
From:
west sussex
Registered:
26-Nov-2006
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Re: using their own?
Posted:
11-Dec-2006 21:38
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Hi,
Most pwcf will get pseudomonas no matter what we do or dont do. Its a fact of life for people with cf. And once its there, its very hard to get rid of.
My daughter has had it for about 18 years now, sometimes it shows, sometimes it doesnt, but it is there. She has never been ill because of it though, she never has a cough with it. She actually has a much worse cough with Staph.
She is in hospital now as she has a pulmonary embolus, which they think was caused by her being immobile for so long in hospital. She was really ill a few weeks back with Septecaemia caused by her appendix. She almost died and was very very ill. Her kidneys also failed and she was briefly put on dialysis.
But even during all this, her lungs were great and all sputum tests grew nothing.
But next month, she may grow psudomonas, who knows. But I do know one thing, she has always said to me how grateful she is that I have never treated her any different from her brothers, and while she knows that there are certain precautions she has to take sometimes,she would be horrified at the thought of having her own cutlery and plate etc.
This is very much a personal thing, but it really wont avoid pseudomonas, cos its all around us. Some people with cf just get it sooner than others.
Trollydolly x
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