Message Boards for the CF Trust

Replies: 5 Pages: 1

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

American cf site
Posted: 11-Dec-2006 19:06

Reply

Hi anyone out there registered on the american cf site? i have just done it, thought it would be nice to see how things are done over there, although i do have a sister who lives in San Francisco, she always fills me in on any new info she hears of, but the site seems a little more complicated then our's, unless it's just me being useless with computers lol

Ally

Posts: 68
From: Hunmanby near Filey
Registered: 06-Nov-2006

Re: American cf site
Posted: 11-Dec-2006 19:37

Reply

Yep I have, the name I use is Gerbillator and I have a new friend over there called Kim
regards
Ally

Karen D

Posts: 6
From: Scotland
Registered: 06-Dec-2006

Re: American cf site
Posted: 11-Dec-2006 19:41

Reply

Are you able to put up a link for that?

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: American cf site
Posted: 11-Dec-2006 19:49

Reply

just www.cysticfibrosis.com and up they pop, but i find it a little harder then our site, but it shows you how many have looked at your link and how many replies you get, so far 15 have looked and 2 have replied,(and i was one of them lol) still thought it would be good to find out how things run over there.But i can't find their spell check so god help them with me

Karen D

Posts: 6
From: Scotland
Registered: 06-Dec-2006

Re: American cf site
Posted: 11-Dec-2006 20:22

Reply

Thanks tracie! I'll have a look. I used to go on Cystic L a few years ago..before the forums started up here..It's Canadian I think, but when I looked it up again recently, it had changed and become far too complicated to use.

maggsmcg

Posts: 60
From: Hemel Hempstead
Registered: 07-Nov-2006

Re: American cf site
Posted: 11-Dec-2006 22:11

Reply

I have belonged to the CF Parents on Yahoo for almost six years now. I did not discover this site until about 18 months ago. When Shelby was first diagnosed in February 2001 there was no UK site that you could join to ask questions so I joined the CF Parents. They are mostly Americans with a dash of lots of other countries including Australia. It was very helpful and I made a particular friend on their that is 69 years old with CF.

I started a UKCF Support site myself but it is not used now even though it still exists. This was much easier and a bit more relevant to our situations.