Message Boards for the CF Trust

Replies: 5 Pages: 1

funky mummy

Posts: 2
From: Mansfield, Notts
Registered: 11-Dec-2006

Newbie
Posted: 11-Dec-2006 13:11

Reply

Hiya, haven't been on this before so hello all. Was just wondering if anyone could goes to monthly meeting etc about cf. I have heard that there is a group that meets at nottingham but am not sure whether to go as it might make me even more upset/worried about my little boy. Just after a couple of opinions and advice really. Thanks

frizzymum

Posts: 37
From: Suffolk
Registered: 07-Nov-2006

Re: Newbie
Posted: 11-Dec-2006 13:38

Reply

Hiya Funky!

If you'd like to meet others parents locally then go for it ...everyone at these groups will have been where you are now, and most remember how overwhelming it is when you're first struggling with diagnosis.

I tried a local group but didn't find it very helpful - I did, however, meet another local mum who little girl has CF and we have since become very close friends...and became the founder members of our local CF fundraising group!

In the meantime, you will gets lots of support and offers of virtual friendship here - welcome aboard!

funky mummy

Posts: 2
From: Mansfield, Notts
Registered: 11-Dec-2006

Re: Newbie
Posted: 11-Dec-2006 13:50

Reply

i'm just a bit concerned that i will come out more worried and upset than i get at the moment, but on the other hand the help and advice might be invaluable. its good to know that I can ask questions like this though, thank you : )

frizzymum

Posts: 37
From: Suffolk
Registered: 07-Nov-2006

Re: Newbie
Posted: 11-Dec-2006 18:34

Reply

I guess you have to try to be honest with yourself about what you're hoping to get out of meeting with a local group?

Will any of them have a cure for you? No! Will there be people there whose children are struggling more than yours? Possibly. Will there be anyone there with all the answers? No.

However - will there be people there who understand what you're going through? Yes. Will there be a collection of experiences and wisdom for you to draw from? Yes. And - most importantly - will there be people there whose children are enjoying perfectly normal childhoods? Yes. It's this last point that was the most reassuring for me.

Whatever you decide to do, just remember that CF affects each of our lpwcf so differently - that you must never assume that 'one size fits all' and what's happened to someone else is automatically going to happen to you.

Karen D

Posts: 6
From: Scotland
Registered: 06-Dec-2006

Re: Newbie
Posted: 11-Dec-2006 20:39

Reply

I can only agree with what frizzymum has said.. It may not be the right thing for you,but it might the best thing you did...I joined our local group when my son was first diagnosed, and and it really helped. Everybody has a different experience of CF..but as frizzymum said, they will know what you are going through...

All the best, Karen x

suzie

Posts: 192
From: chester
Registered: 23-Mar-2004

Re: Newbie
Posted: 11-Dec-2006 22:22

Reply

Hi and welcome to the forum funky mummy, I'm Sue, mum to two lads, Mike who's 26 and doesn't have cf and Chris 24 with cf.

Hope you get as much from here as I have over the years.

Sue