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Topic: Cepacia??
Replies: 5   Pages: 1   Last Post: 09-Dec-2006 11:06 by: cfmom

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Replies: 5   Pages: 1  
cfmom

Posts: 17
Registered: 08-Nov-2006
Cepacia??
Posted: 08-Dec-2006 15:27
  Reply

Hi i have just found out a friend who has a daughter w/cf has been told she has Cepacia.
Do i need to keep my daughter w/cf well away from here they have changed her clinic times, so she's not with everyone else. But when we bump into them we try and keep them apart but how far is far?

DimBloke

Posts: 102
Registered: 11-Nov-2006
Re: Cepacia??
Posted: 08-Dec-2006 16:14
  Reply

There are different strains of cepacia and some are more troublesome than others but I think all are considered highly transmittable to other people with CF.

CF centres usually have a strict segregation policy. It's a difficult situation when it is someone you know but really the best policy is to keep the children well away from each other.

Shadow

Posts: 12
From: Scotland
Registered: 13-Nov-2006
Re: Cepacia??
Posted: 08-Dec-2006 17:14
  Reply

I would say definitely stay away. Cepacia is one you don't want to get. My daughter caught this and we don't know where from. I would say keep her well away.

cfmom

Posts: 17
Registered: 08-Nov-2006
Re: Cepacia??
Posted: 08-Dec-2006 18:52
  Reply

Ok i guessed that was what people were going to say. What about me talking to her mom, then me going by my daughter can that have any effect?

MandyL

Posts: 26
From: Lanarkshire
Registered: 06-Nov-2006
Re: Cepacia??
Posted: 09-Dec-2006 10:53
  Reply

Hi, i remember being in a sticky situation with my daughter and another patient in the hospital. We knew this patient had cepacia and that actually she had not been told long that she only had about a year left. It was late one night and my daughter and i were going back into hospital from being out on pass. We werent concentrating and got into the lift, some other people got in and at first i didnt look but as the doors were shutting i realised who had got into the lift. I let out an OHH and tried to grab the lift door, i caught it, but it seemed forever for it to be opened. My daughter and the other girl were right next to each other face to face but thankfully none of them were coughing. After my OHH sound i just said oh, you are cf hen arent you? Then they got out and went in another lift, i felt dreadful after it incase my reaction was overboard. The doctor said to us we done the right thing and as long as she didnt cough on her it should be ok and so far so good. Oh its sooooo not nice when you have to do that 'keep away from that person' thing!

cfmom

Posts: 17
Registered: 08-Nov-2006
Re: Cepacia??
Posted: 09-Dec-2006 11:06
  Reply

Ok thanks. I'll just have to make sure there's no coughing then. Lol.