Message Boards for the CF Trust

Replies: 6 Pages: 1

CityMan

Posts: 1
From: Lancs
Registered: 08-Dec-2006

Advice Needed Please
Posted: 08-Dec-2006 14:24

Reply

My 5 year old daughter has for the last 12 months been receiving 3 monthly IV's to treat Psuedo's. At the commencement of the IV's, she was also prescribed nebulised Columicin?, but the psuedo was resistant to it, so that was stopped. The psuedo is now sensitive to Colistin?, & we have asked whether she could be prescribed the medication & an I-Neb. The expert opinion is that there is no evidence that nebulised Colistin does anything to treat psuedo's. Therefore, it is proving difficult to obtain the Colistin/I-Neb!!!
Does anyone have any advice? Thanks

DimBloke

Posts: 102
Registered: 11-Nov-2006

Re: Advice Needed Please
Posted: 08-Dec-2006 15:00

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I was under the impression that colomycin and colistin are exactly the same thing

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006

Re: Advice Needed Please
Posted: 08-Dec-2006 15:07

Reply

As far as I'm aware, colistin, colistimethate, and colomycin are all different names for the same thing!

madmags

Posts: 79
Registered: 05-Nov-2006

Re: Advice Needed Please
Posted: 08-Dec-2006 17:09

Reply

To obtain an ineb your GP has to be willing to prescribe Promixin which is more expensive than colistin. They are all the same drug, colomycin, but different brand names.
Maggie

Tamariki

Posts: 54
Registered: 08-Nov-2006

Re: Advice Needed Please
Posted: 08-Dec-2006 21:03

Reply

nothing really to add, all the above are the same thing as far as I know as well!
T.

Koko

Posts: 78
From: West Midlands
Registered: 13-Feb-2004

Re: Advice Needed Please
Posted: 08-Dec-2006 21:06

Reply

Nebulised colistin definitely treets Psuedomonas Aeroginosa - sorry for rubbish spelling!

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: Advice Needed Please
Posted: 08-Dec-2006 22:29

Reply

if your gp is unhappy about the cost remember (and emind them) they get extra funding for people wcf.
sal