Message Boards for the CF Trust

Replies: 2 Pages: 1

Marjolein

Posts: 6
Registered: 14-Nov-2006

qeustion for all! going to talk at a university
Posted: 04-Dec-2006 19:34

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I've got a question for all of you.
A CF doctor from the childrens clinic i used to go to called me about 2 months ago. And said that at their university of medicine they are having a special topics week(s) and that it's about CF. He was going to give one lecture and asked if i wanted to come too. Explain about my CF, what happened in my life till now. And how i feel about everthing too.
We had a long talk on the phone last friday and in the end he asked if there was something i wanted to say in the end of the lecture. Something all future doctors should know.

So my question for you is, do you have any suggestion on what i'd say there?

I think i'm going to say something in the region of how most children with CF grow up very quickly, that most of them are emotionally much older for their age.
And that they know a lot about CF and their body. That doctors should ALWAYS listen too the CFer. The patient knows best.

Any suggestions are welcome!

Thanks in advance!!!

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: qeustion for all! going to talk at a university
Posted: 04-Dec-2006 21:06

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And to listen to parents too. The only time we had any cr@p was when hospital doctors were so superior in their knowledge.

sal

Anders

Posts: 47
From: Glasgow
Registered: 05-Jun-2004

Re: qeustion for all! going to talk at a university
Posted: 04-Dec-2006 22:48

Reply

I've been into uni's a couple of times and spoken to students. In fact i think i'm supposed to go in next week. All you can do is tell them about CF from your perspective, what it's about and how it has affected you physically, emotionally, socially. Just tell them about you and CF, that's all you can do.

Good luck and take care,

Anders