SamT
Posts:
8
From:
Suffolk
Registered:
05-Dec-2006
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Re: Question regarding raising a child as a parent w/cf.
Posted:
05-Dec-2006 10:45
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Hi, I am new to forum and this site.
I am sorry to hear that your experience has been spoilt by errors, it is an expensive purchase especially when it hasn't worked. I had fertility treatment for which I did not pay and if asked to contribute I don't know what we would have decided, particularly for the price of IVF or GIFT.
I am a mum with CF, I have three boys (twins) which I conceived with fertility help - IUI(into uterine insemination) to be precise.
I was worried about my milk & salt content, which was tested as normal. They also get your antibodies so the risk of infection from then is tiny, more likely from nursery when they are starting school and other people.
I had a constant headache when carrying the first and took paracetamol, which I regret as he had dilated kidneys pre birth (prob caused by paracetamol) I also needed antibiotics - fluclox - which is ok.
Carrying twins was tiring and I took fluclox all the way through, they were healthy. I did start to get asthmatic
near the end of the twins pregnancy and had inhalers.
I had a caesarian (both) times, as presented as breech. Was tested for gestational diabetes because they were large babies also. Wasn't, though likely now!
I gave up work as soon as I felt uncomfortable and rested ALOT! I didn't go back to work until they started school, so when I needed to rest they let me, and the same goes now. I have explained everything to them and they used to ask loads of questions about medicines mostly, and now tell them what they want to know and that they have to be careful as they carry the gene. Eldest is nearly 14, twin 10, needs to be said as they are normal growing & quite interested in girls a bit sooner than I'd hoped. I let the schools know about CF incase their behaviour changes were due to stress, worries at home etc, but so far hasn't been a huge issue. We are now entering the abyss of teenagers tho, so who knows what's next? lol
Anyway, we are all experiencing CF in different ways, and we don't know any other way, so cannot compare one to
another, what is good for me, likely isn't for someone else. Take all the advice from professionals but ultimately it is up to you and your partner, and those that care for you should have a say, but in my opinion not dictate. For they are scared too.
I hope this is a help rather than a negative as that is not my intention. I wish you good luck with your decisions. Listen to your instincts, as that is a good indicator for all decisions and never regret the decision you make, that is my experience.
Keep Well!
SamT
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and you will make the right desicion (or it may be made for you). There are so many ways to look at it - but I don't regret it, I'll bring Christian up to do what I try to do myself, and always focus on the positive things.