Message Boards for the CF Trust

Replies: 7 Pages: 1

Samy

Posts: 6
From: Rotherham
Registered: 26-Nov-2006

Cf Story and interviews
Posted: 30-Nov-2006 23:12

Reply

I have done 4 interviews today, and like frizzymum every time ive done one i think of lots of other things i should have mentioned.
Although i am very sad for what gordon Brown is going through, it can only bring much needed awareness, and possibly, further down the line, much needed funding. Just look at today for starters, its been mad, theres probably been more awareness brought today than in the last 10 years. At our house for one the phones never stopped ringing, and with ppeople that know us from work and school etc saying they never realised what it was like.!
So to those that think todays stories have been too negative: People will not dig into their pockets or pick the CFT to raise funds for if they think life is hunky dory.
Thanks Jill

lizzy

Posts: 7
From: eastsussex
Registered: 01-Dec-2006

Re: Cf Story and interviews
Posted: 01-Dec-2006 11:04

Reply

im new to this! have a little boy age 7 with cf diagnosed at age of 2. have to say whilst sad for the Browns it can only do good for the future of all our children as more people become aware and hopefully in time lives will be improved. this is so nice to be able to speak with other parents! thanks lizzy.xxx

Samy

Posts: 6
From: Rotherham
Registered: 26-Nov-2006

Re: Cf Story and interviews
Posted: 01-Dec-2006 16:43

Reply

Any time Lizzy,feel free to get in touch
samy140@aol.com
Jillx

keely kent

Posts: 4
From: kent
Registered: 01-Dec-2006

Re: Cf Story and interviews
Posted: 01-Dec-2006 17:54

Reply

i too have been contacted today to do an interiew and i rang reported 3 times with stuff id forgot lol.
the photographer came and did some nice shots and this time i was well prepared got her meds out the lot!! lol

still hard tho, found it has opened some old wounds, so pleased in one way that its raising profile, but emotional for us all too.

kayz

Posts: 18
From: hants
Registered: 28-Apr-2004

Re: Cf Story and interviews
Posted: 01-Dec-2006 18:21

Reply

Hi, well done everyone!

I did a phone interview with Southern Daily Echo yesterday, it will be in Tuesdays edition.

Also we are going to be doing an interview with Channel 4 news for Sunday

Hope your little one's are well.

Kind regards

Fi

Dawn

Posts: 29
From: Worcestershire
Registered: 06-Nov-2006

Re: Cf Story and interviews
Posted: 01-Dec-2006 23:49

Reply

I have two children with CF 21 and 19. In Malvern where we live there are only a handful of PWCF. Do you think we should try and plug CF by contacting our local paper and making people aware of CF now that its been widely publicised since Gordon and Sarah Brown hit the headlines?

frizzymum

Posts: 37
From: Suffolk
Registered: 07-Nov-2006

Re: Cf Story and interviews
Posted: 02-Dec-2006 10:37

Reply

Hi Dawn,

It's great that you want to help. I suggest you contact Gemma Foy at the Trust as a starting point. She will be able to advise on whether your local papers have been in touch. If not, she may also have some advice on what key messages to bear in mind. She's on gfoy@cftrust.org.uk

Dawn

Posts: 29
From: Worcestershire
Registered: 06-Nov-2006

Re: Cf Story and interviews
Posted: 02-Dec-2006 22:47

Reply

thanks frizzymum