Message Boards for the CF Trust

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tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

IS CF TERMINAL???
Posted: 30-Nov-2006 20:19

Reply

According to Dr Jim Littlewood in todays Mirror when asked is cf terminal his reply was yes, but I didn't think it was can anyone shed light on this for me.

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 20:35

Reply

yes..... there is no known cure and is life shortening..= terminal

abi

Posts: 40
Registered: 28-Feb-2004

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 20:38

Reply

probably sounds stupid but i never thought of it that way...

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 20:42

Reply

and i cant bear to think of it like that either, and best we dontxx

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 20:46

Reply

Sorry i posted that question, its just i also have never thought about it being terminal, and we have never been told so by any Drs

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 20:59

Reply

dont be silly, always best to ask everything, sorry i was the one to replyxx

livvy

Posts: 185
Registered: 06-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 21:04

Reply

I prefer to think of CF as a "life-threatening" illness, not a "terminal" one. "Terminal" to me means there is no hope and we do have hope - lot's of it, so I would never associate the word "terminal" with CF.

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: IS CF TERMINAL???
Posted: 30-Nov-2006 21:05

Reply

thanks for that Livvy, I will now put it out of my mind (or at least push it to the very back)

softie

Posts: 1,070
From: Croydon, Surrey
Registered: 07-Feb-2004

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 15:12

Reply

I don't think of CF as "Terminal" either. It doesn't seem like the right word to use. "Terminal" suggests that the docs can say "I'm afraid you have less than 6 months to live" or something equally imminent. That's not true for me yet, and it's certainly not true for the babies and children!

Richard.

Darling

Posts: 731
From: Here
Registered: 06-Feb-2004

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 16:03

Reply

Sooner or later it's probably going to get me, but I don't dwell on it.

As I said to someone just the other day...if I have a mental moment and forget my Green Cross Code I could walk under a bus (a popular pass time in our city centre) and become worm food.

Then it would not be CF which was terminal, but my own stupidity

FATMAN

Posts: 16
From: ESSEX
Registered: 30-Nov-2006

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 17:29

Reply

Hi guys

CF is both.

According to health professionals, CF is the main causal factor in the death of sufferers = terminal

According to DLA dept, an illness is ONLY terminal if the life expectancy is less than 6 months.

!!!!!!!!!!!!!!!!!!!!!!!

FATMANxx

cupcake

Posts: 141
From: england
Registered: 02-Mar-2004

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 18:27

Reply

I guess CF could be called terminal, as it is going to be what kills the majority of pwcf. I personally don't think of it as terminal, not just because I don't want to, but I think of terminal as having a cetain period left to live, like six months. I would only class CF as terminal in the later stages when treatments are failing to work and the remaining option was a transplant, for example. As most people waiting on a transplant list sadly know they only have X amount of months/years left.

preciousjewel

Posts: 59
Registered: 06-Nov-2006

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 18:56

Reply

I thought that i had read in the Cf Trust leaflet that i was given when Ruby was diagnosed that CF is

A Chronic illness...

I don't think it is a terminal illness because of what others have said above???

DimBloke

Posts: 102
Registered: 11-Nov-2006

Re: IS CF TERMINAL???
Posted: 01-Dec-2006 19:34

Reply

I know CF is often referred to as terminal illness as it fits the criteria of being such as it is incurable and irreversible.

The term is so emotive and negatively loaded though - as people have already said, if someone is terminally ill you think of them having a few months at most to live. When I look in the mirror I don't see a terminally ill person, I see someone with a chronic condition, acne, and a bad haircut; I'm well and loving life.

Hopefully, with the advances in gene therapy and new medications, there will in time be no question of CF being considered a terminal illness.

pinkgirl

Posts: 77
From: Ireland
Registered: 06-Nov-2006

Re: IS CF TERMINAL???
Posted: 02-Dec-2006 00:26

Reply

Actually I think there is a slight medical difference in 'life threatening' and 'terminal'. I'm not quite sure, and stand to be corrected but a medical person told me that when a disease is in its final stages, then it is classed as terminal. But otherwise, it is life threatening...