Message Boards for the CF Trust

Replies: 8 Pages: 1

Tamariki

Posts: 54
Registered: 08-Nov-2006

info please
Posted: 30-Nov-2006 14:24

Reply

could somebody please tell me what article had the info that cf patients that do not get specialist cf care are likely to have 7 years less life expectancy(know I have read it on here in the past year.)
many thanks
tamariki

Captain_dan

Posts: 234
From: somewhere cold but its not snowing yet
Registered: 16-Mar-2004

Re: info please
Posted: 30-Nov-2006 14:53

Reply

i never saw that article. interesting.

in response to your request it could be difficult to track down since the server crash lost all the old posts!

Tamariki

Posts: 54
Registered: 08-Nov-2006

Re: info please
Posted: 01-Dec-2006 10:30

Reply

can anyone shed some light on this article, softie maybe???

xxpammiexx

Posts: 63
From: Manchester
Registered: 05-Nov-2006

Re: info please
Posted: 02-Dec-2006 01:10

Reply

just bumping this as id be interested in the answer..

*Laura*

Posts: 97
From: Warrington, Cheshire
Registered: 15-Mar-2004

Re: info please
Posted: 02-Dec-2006 02:27

Reply

I'm not sure about life expectancy being 7 years less in non-specialist centres, but it's definitely the general consensus that pwcf treated at specialist centres have a better life expectancy - I've read/heard this many times.

I couldn't find the exact article, but if you type ["cystic fibrosis" "specialist care" "life expectancy" ] into google, a few long-winded publications come up that state the above.

Tamariki

Posts: 54
Registered: 08-Nov-2006

Re: info please
Posted: 02-Dec-2006 10:09

Reply

Jim Littlewood has apparently said this at a conference.(who is he?Is he a doc,prof or something else??)

Thank you for the reference laura, will start reading.
T.

bumble

Posts: 30
Registered: 06-Nov-2006

Re: info please
Posted: 02-Dec-2006 10:49

Reply

Jim Littlewood is a highly respected name in the world of CF. Think he's the 'top dog' at Leeds hospital in the pediatrics.

Tamariki

Posts: 54
Registered: 08-Nov-2006

Re: info please
Posted: 02-Dec-2006 12:04

Reply

jolly good , Then he should be pretty safe to refer to then.
Thanks
T.

NorthernStar

Posts: 24
Registered: 02-Dec-2006

Re: info please
Posted: 02-Dec-2006 12:10

Reply

> Jim Littlewood is a highly respected name in the
> world of CF. Think he's the 'top dog' at Leeds
> hospital in the pediatrics.

Was until he retired. He's now Chairman of the CF Trust.