Message Boards for the CF Trust

Replies: 5 Pages: 1

mookymc

Posts: 22
From: ayrshire
Registered: 27-Nov-2006

docs wont listen
Posted: 30-Nov-2006 13:11

Reply

i have just finished my ivs on tues, but still feel rotten. i told them about it , that i was now gettin chest pain, and temps still, but they said i wis brand new, more or less."wrong" cos i hardley ever get chest pain,and iv lost weight,so it dosent take a genius to know thres something wrong. am sick the way gartnavel, just brush everythin under the carpet, and i know that im not alone on this.

Darkies Gem

Posts: 89
From: Doncaster, UK
Registered: 10-Nov-2006

Re: docs wont listen
Posted: 30-Nov-2006 13:37

Reply

Your definately not alone on this. There's a certain member of staff like that at NGH. It annoys me greatly.

This genious reckons I should be working and getting no benefits, even though I can hardley walk, and they still won't provide a wheelchair. And even then, I still wouldn't be able to work, as I have the same pain and weakness in my arms as my legs, and would need someone pushing me all day.

I have a feeling that it's because they've seen people in worse states than me.
There also whinging about my weight and the fact I lost 2kg in under a week, and yet won't help me get money so I can actually afford food.

Gone were the days when a trip to the hospital was a day trip. Now it's just something to make me go grrrrr alot.

I hope you manage to get things sorted hun. Although can I just point out,through all this pain and suffering. One day the doc will suddenly wake up, and then appologising profusily to you. Which gives you a second enjoyment as they then start questioning if there in the right profession, as they didn't spot this sooner.

weemex

Posts: 20
From: Glasgow
Registered: 09-Nov-2006

Re: docs wont listen
Posted: 30-Nov-2006 13:45

Reply

Hey ian i know exactly how you feel. Everytime you go upto gartneval they always turn round and say your fine, trying to get ivs is like comiting a crime with them. We know our own bodies best and know how we feel. Ive been feelin rubbish for about 5-6 weeks now, had 2weeks off ivs and now im on more oral septrin. My chest is still rubbish but they said im fine. How can i be fine if i feel like total rubbish, i think they should try to help us alot more. Anyway rant over lol, i needed to get that out. I hope your ok ian, chat soon.xx

Everlong

Posts: 45
From: Glasgow
Registered: 06-Nov-2006

Re: docs wont listen
Posted: 30-Nov-2006 15:46

Reply

They can't put us on IVs all the time though even though we know it's what we need.

If you keep getting more IVs after a course of them then they won't work as good and eventually won't have much affect at all.

I've been on Septrin so much it hardly does its job anymore, so I definetly don't want the IVs to go the same way.

weemex

Posts: 20
From: Glasgow
Registered: 09-Nov-2006

Re: docs wont listen
Posted: 30-Nov-2006 16:38

Reply

That's very true. But if you havent had ivs for a good few months i dont think it would be such a bad thing to put you on them, if you feel so bad.

But it would be a different story if you were just off them, then your right it wouldn't be a good idea to put you straight back on them. Cos in time you will become resistant to them and that wont be too good.

mookymc

Posts: 22
From: ayrshire
Registered: 27-Nov-2006

Re: docs wont listen
Posted: 30-Nov-2006 17:49

Reply

i know wit yer sayin m8, but i just wish they would admit that i wis rite, this time, after all i need tae be at ma best, cos im on the tx list, canny afford tae be like ****, then get call and canny go, cos iv got a chest infection.