Message Boards for the CF Trust

Replies: 10 Pages: 1

julesandcatherine

Posts: 8
From: Hampshire
Registered: 07-Nov-2006

Possible Daily Mail Article
Posted: 30-Nov-2006 13:00

Reply

Given the raised profile currently in the news for CF, the Daily Mail are coming round tonight to interview myself and my wife and our twins BWCF for a possible article next Tuesday.

Will advise if it goes ahead, could be interesting

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 13:41

Reply

good luck. Can you mention the prescription charges at all. I know yours are younger but it might help older people. Thanks and hope you don't mind me saying this.
sal

julesandcatherine

Posts: 8
From: Hampshire
Registered: 07-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 13:44

Reply

Absolutely, other daft one is we were going to be charged for syringes/needles for nebs as apparently they are not on the listing of things available for prescription

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 13:49

Reply

thanks. BTW we get ours free from the hosptal and the GP. They are great. have you asked yours?
sal

ladybird

Posts: 226
From: Northants
Registered: 05-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 13:52

Reply

Good luck with the article. I've had a photographer round (about something non CF) this morning and he was very professional and took LOADS of pics. Got told to change out of my jeans though.

julesandcatherine

Posts: 8
From: Hampshire
Registered: 07-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 14:07

Reply

My wife vetoed photgrapher tonight on grounds that looks pretty knackered by end of day so they are coming over weekend for that. Both Elizabeth and William are right poseurs in front of a camera.

L.k.

Posts: 36
From: Wales
Registered: 09-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 14:26

Reply

Hi,
Congratulations on doing your 'bit' for CF. i'm sure your twins will look beautiful.

On the matter of needles and syringes. Our CF nurse provides them in boxes of 100 at clinics because these are only available in hospitals. The physio at the same hospital who provided us with the i-neb didn't know this was the case so it might be worth a call. I know they cost £8 per 100 but there's delivery cost etc to consider and as you have twins this will mount up over the years.
hugs L.k.

jc

Posts: 2
From: cornwall
Registered: 30-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 15:21

Reply

hi im new to this, but needles sryngs we get from health centre or hospital to home,

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 16:13

Reply

reading these past post's perhaps it would be a good idea if you could drop it in your interview how all different health areas treat cf differently, some have to pay while others get things for free, just a thought

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: Possible Daily Mail Article
Posted: 30-Nov-2006 18:02

Reply

also the cr@p thats going on at the brighton Hospital...mind you if we just complain about everythin we might be shooting selves in the foot (or should it be feet?!)

sal

julesandcatherine

Posts: 8
From: Hampshire
Registered: 07-Nov-2006

Re: Possible Daily Mail Article
Posted: 01-Dec-2006 12:41

Reply

Well had a 2 hour interview last night, did our best to incorporate the points that people had. Having photos done tomorrow, should look good as company christmas do tonight!!!

Going to be appearing in Tuesday's Health section.