Message Boards for the CF Trust

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amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 11:10

Reply

We have just been filmed by Sophie Raworth with Amelia at home to discuss what CF is like on a day to day basis. We hope we've told it as it is, and an honest picture of CF

niknak

Posts: 31
From: cheshire
Registered: 06-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 11:18

Reply

Wow, will be watching!! Another family has just been on "This Morning". It is good to see cf getting some recognition. How did it go? were you nervous.

Take care Nikki and Holly(2 wcf)xx

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 11:19

Reply

it was fine. a rush as they arrived at 9am!!i hope it went ok!!

ballet girl

Posts: 33
From: East Sussex
Registered: 06-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 11:21

Reply

Cant wait to see it, well done you all this publicity this morning is great although my heart goes out to Gordons family.
Have just watched article on this morning and that was a good report too.
I will have to catch yours tonight as im at the eye hospital with Emma at that time.

Jane

niknak

Posts: 31
From: cheshire
Registered: 06-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 13:19

Reply

Hello again, just watched it.
You did a fantastic job!! You went through such a traumatic start to Amelias life and just look at her now.
She looks fab.
I loved it when she threw the christmas cracker

Thanks for being brave enough to do it.

Take care, Nikki ( mum to Holly wcf aged 2)

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 13:22

Reply

ah thanks nikki. yes was tough at start

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 13:39

Reply

well done. She was a star with her cracker. I only saw the last part but I thought it was lovely

sal

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 13:43

Reply

ahh thx, she is a little star. just hope it helps people understand

frizzymum

Posts: 37
From: Suffolk
Registered: 07-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:09

Reply

I know how you feel - but only on a regional level! I've just done BBC Radio Suffolk, and Holly and I are due to be on Anglia TV tonight.

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:22

Reply

its just been on again bbc 24 news.

lmstepney

Posts: 31
Registered: 06-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:22

Reply

Well done. Will watch later.

scarlettsmum

Posts: 11
From: surrey
Registered: 07-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:23

Reply

I just saw it on bbc news 24. You were all fantastic, well done!

Michelle x

Anders

Posts: 47
From: Glasgow
Registered: 05-Jun-2004

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:37

Reply

For those that want to watch it, you can go here.

http://search.bbc.co.uk/cgi-bin/search/results.pl?q=cystic+fibrosis&uri=%2F&go.x=52&go.y=18

It's on the right hand side, 'living with cystic fibrosis' and there is a picture of Amelia.

Take care and well done for doing the piece Amelia's mum,

Anders

p.s. I wish i could meet Sophie Raworth

cupcake

Posts: 141
From: england
Registered: 02-Mar-2004

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 14:39

Reply

Saw it on BBC1 earlier, well done. Didn't realise it was parents off the forum at the time so its nice to come on here and 'know' who it was

Your daughter is a cutie.

Frizzymum - what region of anglia tv will you be on? Easter or western, do you know? I watched last week to see Becky and her 2 wcf but they where on the eastern region and we only get western here. (didn't know there was a difference until I didn't see her but others did, was wondering how I'd managed to miss them!!!!). Maybe you'll be on both what with it being a big story due to the Browns diagnosis? Will probably watch it just incase but wondered if you knew?

Well done for so many of you getting on TV and radio, no one has contacted us but don't think I'm brave enough anyway so maybe thats a good thing

amelias mum

Posts: 44
From: London
Registered: 29-Nov-2006

Re: BBC News at 1pm and 6:Cystic Fibrosis Family
Posted: 30-Nov-2006 19:15

Reply

just amazing to see the amount of coverage today. Great articles in the Mail too. Its only one day, but im sure its made a huge impact on people in raising awareness and hopefully funding.