Message Boards for the CF Trust

Replies: 8 Pages: 1

Annabelsmum

Posts: 7
From: North West
Registered: 06-Nov-2006

Moving to Newbury
Posted: 30-Nov-2006 07:34

Reply

Hi
We are looking to move down to Newbury, Berkshire in the New Year and was wondering if anybody else lived that way and could tell me which hospital we would go to for care?
I was hoping Oxford or Southhampton for a specialist centre but am not sure for the day to day care?
I did post this a few months ago and several people replied but it's been lost in the crash!
Thanks for any help
Karen

kelly

Posts: 15
From: Berkshire
Registered: 05-Dec-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 16:53

Reply

Hi my names kelly and I live in Berkshire with my 2 boys Lewis 3 wocf and 9 weeks wcf we go to the royal berkshire hospital and the staff seeem to be fantastic, The specialist i think currently see's 40 cf patients in the berkshire area.we've been told that we will also go to the radcliff in oxford once a year for tests

Hope this helps
kelly x

Annabelsmum

Posts: 7
From: North West
Registered: 06-Nov-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 19:14

Reply

Thanks for this. I realise you are a bit new to this but do you know if there is a dietician, a physio and an outreach nurse at the Royal Berks?
This is what we have been used to up here in Blackpool and I know that care can differ around the country.
Cheers
Karen

kelly

Posts: 15
From: Berkshire
Registered: 05-Dec-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 19:26

Reply

yes there is a dietician and a physiotherapist but i don't know what a out reach nurse is.. could you explain?

Annabelsmum

Posts: 7
From: North West
Registered: 06-Nov-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 20:26

Reply

Hi
We have a nurse who comes to visit about every 4 weeks to take a cough swab. She also comes out if I think that Annabel has an infection and takes a swab then.
She's just called Outreach as she visit's people in their houses, I think she works on the ward as well though.
Karen

madmags

Posts: 79
Registered: 05-Nov-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 21:17

Reply

Hi Karen.
I live near Basingstoke and they have a fantastic paediatric consultant who specialises in CF at Basingstoke.. There is a good team but possibly they will not home visit in Newbury. Nim (14 wcf) goes to school in Newbury and the paediatric community nurses do go to her school to do her IV's though.
Maggie

(who originates from Bolton!!)

kelly

Posts: 15
From: Berkshire
Registered: 05-Dec-2006

Re: Moving to Newbury
Posted: 05-Dec-2006 23:20

Reply

We've had a lovely nurse who has visited us a few times since my son has been diagnosed. i have her number and can phone her when ever i'm worried or need advice. she has reassured me that if i feel my son is unwell, she will come out and do a cough swab, this is not done on a regular basis its as and when my son needs it.so I think yes is the answer. they have been very supportive and seem to do anything to help x

Annabelsmum

Posts: 7
From: North West
Registered: 06-Nov-2006

Re: Moving to Newbury
Posted: 07-Dec-2006 20:52

Reply

Hi
Thanks for the replies, looks like either Basingstoke or Reading are good.
Madmags in Basingstoke which specialist centre are you affiliated to?
Cheers
Karen

madmags

Posts: 79
Registered: 05-Nov-2006

Re: Moving to Newbury
Posted: 07-Dec-2006 22:04

Reply

Officially we are joint care with Southampton but the consultant at Basingstoke is so good that we have only been there once when Nim was a baby. (you can choose to go there more often if you wish)
Nim is going to have a port fitted in the New Year and will have to go down to S/hampton for that but hopefully only for the day and then back to B/stoke.
The community team at B/stoke ar excellent but, as I said before, they do have a limit to where they will cover.
Basingstoke is a much smaller hospital than Reading. Nim goes to Reading for orthodontic treament so I have been to both. I suppose I am a bit biased as I work for Basingstoke hospital (but in a school)but I do think it has a more personal atmosphere and you get to know the whole child health team really well.
Good luck. I am sure you will get good care where ever you choose.
Maggie