Message Boards for the CF Trust

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kaye

Posts: 25
From: lancashire
Registered: 05-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 16:47

Reply

Best wishes to young Fraser and his family.

We're thinking of you all.

Kaye, Jonny and Leah ( 10 months wcf ) xx

Pauline

Posts: 12
From: Ayrshire
Registered: 07-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 16:53

Reply

I would just like to wish the Brown family all the best. It doesn't matter who you are, this horrible disease can affect any family. I myself have CF, I'm 43, and had a double lung transplant in March 2005. I have a 13 year old son who also has CF, and keeps fairly good health. Hasn't been in hospital since he was 3 years old, which is lucky for us!

It is a struggle getting your head round all the treatment, physio etc, but by now it will be getting like a second nature for you all.

Best of luck, enjoy your family and don't let CF rule!

Pauline

mon

Posts: 2
From: home
Registered: 12-Feb-2004

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 17:21

Reply

i firstly would like to add to what everyone else has put
by sending my best wishes to the brown family
next on a purely selfish note as a parent of a ypwcf. i hope the care of all people that suffer from the awfull illness will dramatically improve now there is someone on the inside (you might say)
i apologise if anyone is offended by my post
but cf has been neglegted for far to long

Em

Posts: 6
From: Dumfries
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 17:25

Reply

Just want to wish you all the best. I am an adult with cf who generally keeps quite well. I hope that you manage to get your head around all the treatment quickly and I hope that Fraser stays as well as possible for the future.
Enjoy life, best of luck
Emma

weemex

Posts: 20
From: Glasgow
Registered: 09-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 17:33

Reply

Thinking of yous at this time. Hope yous are keeping your spirits up. I myself suffer from CF. Every year the treatments and resarch is getting better. Your little son has a great outlook on life just now with things improving all the time. These boards are amazing, you get so much advice and helo through them and i know i would be lost without them. Take care.x

Caroline_S

Posts: 55
From: Blackburn
Registered: 05-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 18:55

Reply

Thinking of you, best wishes and Hope everything goes well for you all

Jo & Abi

Posts: 44
From: West Sussex
Registered: 08-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 21:16

Reply

Thinking of you all and hoping
little Fraser keeps well.

Best wishes Jo and ABi X

X

madmags

Posts: 79
Registered: 05-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 22:03

Reply

Every time I hear of a newly diagnosed child it takes me back 14 years to when Nim was diagnosed. If you had told me then that she would be a happy, well adjusted, teenager who is in all the sports teams at school and has more energy than the rest of the family put together I wouldn't have believed you BUT it is true and I am so proud of all her achievements.
Take heart that there are fantastic people around to support you and your family. Treatments are improving all the time and little Fraser is lucky to have such an obviously loving family who will insist on the best!!
Maggie

Message was edited by: madmags

Helenz

Posts: 11
From: Sheffield
Registered: 05-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 22:24

Reply

i would just like to send the brown family my best wishes for the future and my thoughts are with them, like everyone else on the site we know what your going through and it does get easier with time.

We should all be optimistic and hopeful for the future.

Best wishes & i hope frazer keeps well.

Helen

lmstepney

Posts: 31
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 01-Dec-2006 11:18

Reply

From Lizzy. East Sussex
Hi there just want to say to both of you my thoughts are with you at this difficult time, but need to say it will get easier as time goes by. My son is 7yrs of age (diagnosed with cf just after his 2nd birthday) He is an absolute joy, takes everything in his stride and above all
is extremeley well (thank god) it is hard some days but it has become such a part of our lives now that we just get on with it! you both will too in time.
take care
from liz walters and Harry (age 7!)xxx

michelle.n.

Posts: 2
From: Derry City, Northern Ireland
Registered: 01-Dec-2006

Re: Message for Gordon Brown...
Posted: 01-Dec-2006 12:27

Reply

Thinking of you all, little Frazer looks beautiful! reminds me of the day we had our diagnosis, it wasn't easy at the time but now we are a really happy family and get so much joy out of both our girls!