Message Boards for the CF Trust

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Mary Mac

Posts: 3
From: Isle of Skye, Scotland
Registered: 07-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 21:39

Reply

To little Fraser and his family

Hope that all these messages are of some sort of comfort. Sometimes, it's just nice to be able to see you're not the only ones. We've all had the dreaded diagnosis, but its not all bad.

Thinking of you all

Mary (mummy to a happy, healthy 2year old with CF)

sally 1

Posts: 128
From: oldham
Registered: 09-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 22:32

Reply

I know this will seem like the end of the world right now. But its not. Take care

sal

MoO

Posts: 43
From: West Midlands
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 22:36

Reply

Sending love and supportive thoughts at a time when you need it most! It will get easier with time. I have a daughter aged 5 wcf, her name is Grace and she is very well. There are a lot of ups and downs with cf but make the most of every moment with little Fraser, and above all try to enjoy this early time because it flies by so quickly.

MoO and Grace

meggy

Posts: 30
From: The South
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 22:45

Reply

All the best to all four of you - you will all be learning how to live with CF over the years to come. Hope little Fraser keeps well. My Joel, age 3 wfc is well and thriving and a great joy to all his family and friends!

Try and keep in touch with other CF carers - they can be a great source of support and information, as I have found with this site.

Moonstone

Posts: 10
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 22:46

Reply

I can only re-iterate what others have said. My thoughts are with your family right now and the future does look bleak right at diagnosis but things do get better. My daughter was diagnosed at 3 weeks old and now, 4 years on, I can't believe how my husband and I have coped with all the medication etc that has been thrown our way.

Our daughter struggled with weight for the first 3 years, but this year has been her turning point and is now on the 90th percentile for weight and has bags of energy. Hopefully your son, with your help, will grow to be as strong and willful as all the other children and adults that are living with this dreadful illness today.

Alison

Genie

Posts: 137
From: Norfolk
Registered: 07-Feb-2004

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 22:53

Reply

Thinking of you all xxx

scarlettsmum

Posts: 11
From: surrey
Registered: 07-Nov-2006

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 23:06

Reply

So sorry to hear your news. My world fell apart when my daughter was diagnosed in November last year, but one year on, she is thriving. It's been hard, but not the nightmare I expected. Obviously we don't know what the future will hold, but then again, does anyone?

Take care,I wish you all the best.

Michelle xx

windy

Posts: 16
From: lytham st annes lancashire
Registered: 13-Feb-2004

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 23:08

Reply

Gordon,Sarah and fraser,

Thinking of you at this difficult time,it brings back all the memories of when our daughter Millie was diagnosed 3 years ago,this site is full of wonderful people just like you that support,offer advise and send lots of love and hope to each other day and night.

Lots of Love
Gail,James & Millie

ClareT

Posts: 85
From: Kent
Registered: 06-May-2004

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 23:32

Reply

Sending love and hugs to Gordon, Sarah and family.

You can do this.. I know you know you can.. and will..

... but just making sure!

Everyone on here knows what you're going through. When my 14 y/old was diagnosed at 5 weeks I remember sitting in the hospital in the room where they had brought tea and tissues in a tray (bad sign!) and thinking.. "I don't want to deal with this... but seeing as I have to, I'm going to get this boy into SWIMMING!" (I had already been reading up..)

And I did. And I feel very privileged to say that I have a big strong, muscley, 'healthy' teenage lad with all the usual teenage issues, who swim trains for four hours a week, and who (by the skin of his teeth at times!) is staying on top of his health issues. CF is a big part of our family life but it hasn't taken over.

I think you're very strong and brave to have been carrying on doing what you do, the way you do it, since July, whilst dealing with this knowledge. I wish you all the luck and healthy vibes in the world.

Get him into swimming

(And if I may be so bold, PLEASE get the CF screening added to the heelprick test for ALL the newborns in the UK, as Tony promised would happen before he came to power..)

Best wishes and kindest regards

Clare x

(Does anyone think the Browns will see these?

)

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: Message for Gordon Brown
Posted: 29-Nov-2006 23:33

Reply

would just like to pick up on Imstepney thread posted at 20:27 is there anyway all this thread could be passed on to the Browns when complete so we can show our support

softie

Posts: 1,070
From: Croydon, Surrey
Registered: 07-Feb-2004

Re: Message for Gordon Brown...
Posted: 29-Nov-2006 23:34

Reply

Sending wishes of strength, god luck and good health to the Browns.

Richard.

The Waltons

Posts: 13
From: Midlands
Registered: 25-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 00:02

Reply

I am sincerely upset for the you and your family. Its hard enough to come to terms with, than to have to deal with the press too. This is very close to my heart as it is everyone on these boards. I really feel for you and your familty through this very tough time and hope that you can have some peace and time alone to deal with this.

Please enyoy your son as wee do ours

Take care of each other

Love

susan

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 02:07

Reply

Sending our sympathy, empathy and best wishes to the Brown family. It is tough news to take, and when I saw on the news this evening that your sweet little boy has CF too, my heart went out to you.

I have two young children with CF, and so I know what the next few months might be like, getting used to a whole host of treatments and medications, but as daunting as it seems at the beginning, it will become second nature.

All the best,

Rebecca, Adrian, Seren & Dylan xxx

suzie

Posts: 192
From: chester
Registered: 23-Mar-2004

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 02:18

Reply

Sending many positive vibes to you and your family, we've all been where you are now and have an inkling of how you feel.

This place is brilliant for support, a laugh, and advice when you need it quick.

Take care and welcome aboard.

Sue x

Deb

Posts: 28
From: Forest of Dean
Registered: 12-Nov-2006

Re: Message for Gordon Brown...
Posted: 30-Nov-2006 06:27

Reply

My son was diagnosed at 5 weeks and now is a very healthy robust 4 year old who started school last September. Cf is very variable in its effect on people and I am very aware that so far CF has had only a marginal impact on our lives and I just pray that I will be writing the same sort of thing in 10, 20 or 30 years time.

It is hard enough coming to terms with CF as an parent but to do so in the full glare of publicity must be particularly difficult.

My very best wishes to all the Brown family but especially little Fraser,

Deb