Message Boards for the CF Trust

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Lisa90210

Posts: 43
From: Surrey
Registered: 02-May-2004

TRANSPLANT CALL
Posted: 29-Nov-2006 12:00

Reply

Well I had my 3rd transplant call yesterday at 8.45am which really threw me as the other calls have come late at night. I must be an expert now at getting out the house so quick! I had a police car come and pick me up and whilst Mum and I were whizzing down the M25 at high speeds my Dad followed in his car. I had all the usual tests, sats,blood pressure,temp etc then they took all the bloods. I then had to have the delightful prep scrub like Oli described, not very kind to your skin I must say! Then it was a waiting game in my lovely NHS gown. It seemed to take ages for news, they were doing various tests etc on the lungs and each test they did came back as looking good. The coordinator was coming in and out my room updating me. The time got longer each time she came in with news until it was an hour apart. Eventually at 5.45pm I was given the news that sadly the lungs had shown sign of infection and were therefore no good! It was such a let down as I had really hoped it would be third time lucky. So after a well needed cup of tea with loads of sugar we made our way home via Macdonalds drive thru as I was absolutely starving.
Lisa

robynt

Posts: 22
From: brighton
Registered: 16-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:05

Reply

sorry to hear that lisa. i can't believe this keeps happening! us tx cfers have been really unlucky lately. mind you the high speed journey sounds like fun!
robyn x

Darling

Posts: 731
From: Here
Registered: 06-Feb-2004

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:05

Reply

From your and other posts there's a lot of "nearly there" happening.

Although it's not quite the result everyone on here has their fingers crossed for, at least there are calls and it seems maybe all the tonnes of hard work into awareness raising is starting to pay off.

Lots of crossed digits making this difficult to type

livvy

Posts: 185
Registered: 06-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:09

Reply

Oh how disappointing Lisa.

Bless you. I sincerely hope the next call is the one you so desparately need. Three call's and none suitable - must be absolutely crushing. Fingers crossed for a good clean pair next time.

sandylizz

Posts: 97
From: Shrewsbury
Registered: 10-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:34

Reply

Hope your not feeling to down from the 3rd experince and I really hope your call comes soon

xx Sandy xx

Lisa90210

Posts: 43
From: Surrey
Registered: 02-May-2004

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:52

Reply

Thank you everyone for your support, it really means a lot. There was another person waiting for a transplant at Harefield yesterday so I am not sure whether his went ahead or not.

All we can do is keep our fingers crossed for everyone waiting.

Lisa x

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 12:53

Reply

Fingers tightly crossed here for everyone currently waiting for a tx.

So sorry to hear that it didn't go through for you Lisa.

Big hugs.

Becky x

L.k.

Posts: 36
From: Wales
Registered: 09-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 14:04

Reply

I'm sorry to hear that yet again you've had a false alarm.
Cross fingers you will be lucky a fourth time and create a new 'saying' at the same time.
L.K.

trollydolly

Posts: 38
From: west sussex
Registered: 26-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 14:53

Reply

Hi Lisa,

God Im so sorry it didnt work out for you this time. Surely next time it will be ok, 4th time lucky eh?

Praying you get another call soon.

Love and hugs
xxxx

Daisy!

Posts: 40
Registered: 06-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 22:03

Reply

Hey Lisa! Guess we've had a busy few nights eh?! Me on Monday night then u! Hope you're ok- must be a nightmare for u the third time! Thinking of you, hugs x

tj

Posts: 33
From: Manchester
Registered: 06-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 22:09

Reply

Hi Lisa,

Really sorry to hear the lungs weren't right but hope you get your call very soon.

tinekax

Lizzie83

Posts: 44
From: Manchester, UK/ Connecticut, USA
Registered: 06-Nov-2006

Re: TRANSPLANT CALL
Posted: 29-Nov-2006 22:26

Reply

Aww i'm really sorry lisa this wasnt your time. I hope you get the real call soon
Lizzie xxxx

Oli

Posts: 201
From: Milton Keynes, England
Registered: 12-Feb-2004

Re: TRANSPLANT CALL
Posted: 30-Nov-2006 09:02

Reply

I'm sorry it didn't work out, Lisa - what do you say after "third time lucky"...?

Still, as Darling said, at least there seems to be an increase in people willing to donate organs, even if they're not always of the tip-top quality we require!

Lisa90210

Posts: 43
From: Surrey
Registered: 02-May-2004

Re: TRANSPLANT CALL
Posted: 30-Nov-2006 21:41

Reply

Thanks Oli,

Yes at least its a good sign that there seems to be a slight increase in donor organs. I just cant believe that out of the three calls I know of just this last week of people attending Harefield that not one was good enough to go ahead.

Anyway peeps stay positive our time will come

Merlin

Posts: 46
From: North East
Registered: 07-Nov-2006

Re: TRANSPLANT CALL
Posted: 01-Dec-2006 06:01

Reply

Good luck Lisa,,,am thinking of you.