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Topic: Eastern Daily Press
Replies: 4   Pages: 1   Last Post: 02-Dec-2006 02:27 by: BeckySerenDylan

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Replies: 4   Pages: 1  
BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006
Eastern Daily Press
Posted: 26-Nov-2006 15:32
  Reply

The photographer just left, he did a couple of shots of us all sat together as a family, a shot of the children on their own, Seren on her own, and then a photo of me doing Seren's physio on her physio bed, and a photo of Adrian giving Dylan his Eflow nebuliser. He also got a shot of the front cover of the calendar.

I gave the journalist the interview over the phone this afternoon too, he wanted to know about how we came to be affected by CF, what treatments they have to have, what Dylan's health has been like over the past 2 years, how much his treatment costs, what the CF Trust does, a little information on the possible cure being tested, and what the future might hold for Seren and Dylan.

And of course, how people can buy the calendar, and how much it costs.

Fingers crossed, it might be in tomorrow's edition of the Eastern Daily Press, if not, it should be in Tuesday.

Phew, hopefully that's the publicity done with for now!

Becky x

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006
Re: Eastern Daily Press
Posted: 30-Nov-2006 23:49
  Reply

Just to update,

EDP phoned me back today wanting more info to make the article even bigger, and to put it in tomorrow's paper (it hasn't gone in yet).

They wanted more information on what sorts of treatments are involved, what the future might hold, gene therapy, transplants, and asked me to guess what sort of treatment little Fraser might be starting.

Fingers crossed for the article tomorrow!

Becky x

spanglophile

Posts: 100
From: Sunny Norfolk
Registered: 09-Feb-2004
Re: Eastern Daily Press
Posted: 01-Dec-2006 16:25
  Reply

I've just read it! Lovely big photo - your two are so sweet! Nice to see some local coverage (I'm a Norfolk gal). x

Genie

Posts: 137
From: Norfolk
Registered: 07-Feb-2004
Re: Eastern Daily Press
Posted: 01-Dec-2006 20:55
  Reply

Well done Becky

Lovely pic and interview...went out and bought the newspaper especially.

Also thank you for the Christmas card...my first one. Not even bought mine so I will post yours as soon as.

Take care
Luv Gina xxxx

BeckySerenDylan

Posts: 146
From: Suffolk
Registered: 06-Nov-2006
Re: Eastern Daily Press
Posted: 02-Dec-2006 02:27
  Reply

Yay for the card Gina (just posted to you about it in your update thread!)!

Am really chuffed with what went in the paper, lovely photo, and it was a nice sensible article with lots of info on CF, but the calendar wasn't publicised enough, and they didn't use the physiotherapy and nebuliser shots (which they said they would), so it wasn't great, but certainly the best one yet which we've done.

Becky x