Message Boards for the CF Trust

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ladybird

Posts: 227
From: Northants
Registered: 05-Nov-2006

Re: Creon in Pots ??
Posted: 22-Nov-2006 09:37

Reply

Susan, it sounds as if you have a pot of creon with a scoop for Charlie? Ocean has a higher strength, but in capsules that we just open and tip onto some apple sauce to give him. If Charlie and Ocean were taking the same amount of creon strength-wise then you would be doubling the amount of granules for Charlie to get the same strength that Ocean has out of the capsules I believe! Hope that made sense?? I know what I mean anyway

Phillippa

Posts: 42
From: Durham
Registered: 06-Nov-2006

Re: Creon in Pots ??
Posted: 22-Nov-2006 09:48

Reply

We get the Solvay Creon 10000 in pots too, always have done. We use the pharmacy in Sainsbury's. I REALLY hate popping pills out (we have to for Fluclox for both of the girls) I would have a hissy fit if I had to pop out creon too

Message was edited by: Phillippa

susan&charlie

Posts: 16
From: midlands
Registered: 07-Nov-2006

Re: Creon in Pots ??
Posted: 22-Nov-2006 11:48

Reply

Thanks Shadow that has helped alot but one question if you don't mind, when and who decides what creon strength then? Charlie is on about 14 scoops a day would this be enough then?

Oh blimey this is all complicated stuff, well it is too me I just thought that creon was creon how wrong can I be !

Cheers buddy

ladybird

Posts: 227
From: Northants
Registered: 05-Nov-2006

Re: Creon in Pots ??
Posted: 22-Nov-2006 12:07

Reply

Ah, well the strength depends on the contents of his nappy!!! Which is dependant on the individuals pancreatic sufficiency. I've no idea why some clinics give micro and others don't, I think ours don't as it's just as easy to open a capsule and it's less to actually give.

Aidan

Posts: 12
From: Bristol
Registered: 08-Nov-2006

Re: Creon in Pots ??
Posted: 22-Nov-2006 14:49

Reply

To return to our original subject: when our chemist changed hands, I got blister packs. I asked nicely and - as a large "customer" - they changed subsequent orders back to pots. If you have a sensible chemist it should be fine (I have a good relationship with my chemists because they often know more about my drugs than my GP).

Aidan

dunc_90_chelsea

Posts: 1
From: London
Registered: 24-Nov-2006

Re: Creon in Pots ??
Posted: 24-Nov-2006 19:06

Reply

you can get the creon in pots from boots (You may have to ask though) I hope that helps