SarahE
Posts:
24
From:
Kent
Registered:
06-Nov-2006
|
|
Re: Calendar Publicity 
Posted:
17-Nov-2006 17:54
|
|
Well the paper have been today to take a few photos of Grace (and me - yuk!) and then this afternoon the paper phoned again and said the editor has decided that they would like to do a feature about Grace and CF etc so on the phone they interviewed me and asked me how we felt about CF, how we felt when Grace was diagnosed,how we deal with it,a day living with CF,how do we cope,did I have a test when pregnant with Hugh (bit personal I thought!),medication,physio,family support,financial strain (what?!),does CF stop Grace doing anything etc etc
I thought it was great that they were so interested and am really pleased that CF will get some publicity. I am a bit worried that I have said something wrong or they will print my feelings etc that are not quite true. I am also feeling a bit funny as they asked where Grace went to school and I obviously told them which I am fine about, but I do hope that there is no come back for Grace with regards to her having CF etc
I don't think this is coming out right, perhaps it is as I am a bit 'CF sensitive' at the mo and I have never had a story like this done before. I am always worried about people finding out about CF and how they will react and always have this dilemma when I have told people about it and wonder whether I should have or not. I hope people know what I mean. What do others do?
Anyway, this was supposed to be about the publicity and I have gone slightly of track!
Sarah
x
I have just re read what I have written and I think what I am worried about is some sort of sob story in the paper where people will maybe pity Grace, I would hate that....................
|
|
I am really pleased as last year they didn't come to do a photo and did only a small piece on it. I will have to get her best frock out now............
