Message Boards for the CF Trust

Replies: 9 Pages: 1

Sarah R

Posts: 5
From: Worsley, Manchester
Registered: 16-Dec-2006

Sweat glands on palms of hands
Posted: 16-Dec-2006 15:14

Reply

Hi, this is my first time using the forum. I've a 16 yr old son who has CF, I'm posting this on your forum in case this has happens to adults with CF. Over the last few months the skin on the palms of my sons hands have changed. The skin has changed colour to white, its hard to describe but something is happening under the skin as it isn't dry flaky skin. There are no erruptions. We have been seen at dermatology at hospital as he developed urticaria/allergy last time he had IV's. The hospital haven't seen anything like it before, they are wondering if it is something to do with his sweat glands with him having CF. Has anyone seen or heard of this before?

Tim Davies-Moss

Posts: 145
From: Shropshire
Registered: 06-Nov-2006

Re: Sweat glands on palms of hands
Posted: 16-Dec-2006 17:36

Reply

he will be glad to know that the only known cure. is for him never to do the washing up

jokin, could not resist

p.s sorry im no help.. but im sure your son will like the advice

softie

Posts: 1,070
From: Croydon, Surrey
Registered: 07-Feb-2004

Re: Sweat glands on palms of hands
Posted: 16-Dec-2006 19:52

Reply

This is a new one to me too! I hope it's nothing serious and that the hospital get it sorted out.

Take care!

Richard.

joanna

Posts: 8
From: australia
Registered: 05-Dec-2006

Re: Sweat glands on palms of hands
Posted: 16-Dec-2006 22:36

Reply

Hi there

Here's a post form another forum site (posted address below), which may be the same thing your son is experiencing Sarah...there's a few other posts at that site about this subject which may be helpful...sounds similar anyhow.
jo

http://members5.boardhost.com/CFGSH/msg/1153882013.html

Here's from the 2006 European Conference:

Aquagenic wrinkling of the palms (AWP) is characterized by the development of edematous white plaques on the hands when exposed to water. To date, 30 cases of AWP have been reported in the literature, 17 of which were CF pts. 6 of the CF pts at this clinic had this condition. Clinically, the whole of the hand appeared white in color, edematous, and excessivly wrinkled. In three cases, the reaction was so dramatic that finger movement was limited. In 4 cases, desquamation (sheeding of skin) occurred, mainly at the finger tips. The reaction persisted up to one hour post testing. The incidence of AWP in CF is likely to be much higher than the small numbers reported in the literature to date.

Sarah R

Posts: 5
From: Worsley, Manchester
Registered: 16-Dec-2006

Re: Sweat glands on palms of hands
Posted: 16-Dec-2006 23:14

Reply

Thanks alot for the responses especially to you Joanna, this sounds to me like whats happening to my sons hands. Believe me its a great help. I'll take this info. to the hospital, should I tell him no washing up?? What 16yr old does the washing up?

jac

Posts: 19
From: Scotland
Registered: 06-Nov-2006

Re: Sweat glands on palms of hands
Posted: 17-Dec-2006 09:44

Reply

Joanna - thanks for posting that. I get this whenever my hands are in water for over a few minutes. Its is especially bad when having a bath, and I have at time resorted to wearing latex gloves taped at the wrists when in the bath! It can be fairly painful to move my fingers for about 30mins after a bath. It seems to vary in severity though..over the summer this year it was really bad, and I thought it was to do with the hot weather. My hands would start to go wrinkly if my palms were sweating.

I think it is probably massively under reported..I have never mentioned it to my cf team. My sister also had it.

Jac

joanna

Posts: 8
From: australia
Registered: 05-Dec-2006

Re: Sweat glands on palms of hands
Posted: 17-Dec-2006 10:14

Reply

I'm so glad that this has been helpful to people. I must admit, I'de never heard of it before either, I thought it must be fairly rare, but maybe it isnt.
One girl mentioned on the other forum (where I first read about it, address is on original post to Sarah) that using curcumin seemed to make a difference, although she didnt really know whether the two were related or not.
jo

alibozo2

Posts: 13
From: sevenoaks
Registered: 11-Dec-2006

Re: Sweat glands on palms of hands
Posted: 17-Dec-2006 21:22

Reply

Hi my son gets this on his hands and feet when he is swimming alot in the summer. Have never really worried as it doesn't seem to bother him. Do you think I need to get him to wear gloves?

alibozo2

Posts: 13
From: sevenoaks
Registered: 11-Dec-2006

Re: Sweat glands on palms of hands
Posted: 17-Dec-2006 21:23

Reply

Hi my son gets this on his hands and feet when he is swimming alot in the summer. Have never really worried as it doesn't seem to bother him. Do you think I need to get him to wear gloves?

jac

Posts: 19
From: Scotland
Registered: 06-Nov-2006

Re: Sweat glands on palms of hands
Posted: 17-Dec-2006 22:32

Reply

If it doesn't bother him, then I wouldn't worry

I only wore gloves over the summer because for some reason my hands were very painful when they wrinkled.

If its not sore, I wouldn't bother..he would probably be embarrassed anyway