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Darkies Gem

Posts: 89
From: Doncaster, UK
Registered: 10-Nov-2006

to stop, or not to stop. That be the question!?!
Posted: 12-Dec-2006 14:29

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Yeaterday after been at clinic for my annual review from like 9am to 4pm. I got a call from my doctor. I was on my way home, and had fallen asleep in the abulance thing, so wasn't payingenough attention to argue back. Basically my doctor told me I have to stop my fluclox as it's causing my liver result level thingys to rise. This confused me. Firstly as I know my doctor knows I've been having a huge struggle with taking my meds. When feeling liek the hospital doesn't give a damn whether im on them or not hasn't been helping matters.

Well this also means I haven't been having my Fluclox OR my Urso. I have been having my colomycin though.
Well, I took some matters in my own hands yesterday and spoke to the nice pharmacist lady, who agreed to give me fluclox syrup to take instead of tablets, to see how i get on. My theroy been that I REALLY like the taste of fluclox, and as that will be 4 less tablets to take at a time, it might help with my tablet taking problem.

Unfortunately the pharmacy decided to be helpfull, and pre-mix all the bottles for me, so i have to use them all by the 25th, so obviously on the 25th all these bottles are going to have to be thrown if I stop taking fluclox like the doctor advised. Which seems such a waste. Especially when my liver problems are probably down to my own neglect of tablet taking.

I'm gonna phone back up tomorrow to ask about it, as the doctors not in today. As I really really need antibiotics at mo. He's put me on cipro and septrin to treat a chest infection that's starting up. But i'm resistant to cipro. I'm going to be reliant on just the septrin to treat a staph and psudo infection, when i could obviously do with my fluclox, especially as i've now got into my head how much i need it.

Also if this infection does kick up too much of a fuss, there gonna be stuck for ideas, as they don't won't to be giving me IV's due to my CPK levels still been through the roof and my kidneys been dodgy.

ahhhhh, they do there best to confuzzle me:P

Message was edited by: Darkies Gem

Test

Posts: 14
From: Just outside parts unknown
Registered: 06-Nov-2006

Re: to stop, or not to stop. That be the question!?!
Posted: 12-Dec-2006 15:11

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Hi, sorry to hear you've been having liver trouble.

I'm in the same boat as you. I struggle to take all my meds and I have a high liver function. I was prescribed minocycline for anitbiotics, and urso for my liver. I hadn't been taking either for awhile when I got a call saying my liver function had risen again and could I stop the minocycline. When asked if I had been taking my urso I did lie and say I had. I also asked what my liver function was and what it should be. It should be between 20 and 120 (roughly), and mine was at 570! They said leave it a week and they would do more blood tests to see if it made any difference. So I took my urso just to see if it would actually make any difference. Had my bloods a week later and my function had come down to 320! Not perfect but still one hell of a difference, and thats me going from no antibiotics or urso, to just urso. So I can safely reccomend that taking your urso would help lots, and not taking it is more the deciding factor than not taking your fluclox.

Hope this helps
Joe

Darkies Gem

Posts: 89
From: Doncaster, UK
Registered: 10-Nov-2006

Re: to stop, or not to stop. That be the question!?!
Posted: 12-Dec-2006 17:34

Reply

Yer thanks Joe

It just really seems daft to me, when I've been on fluclox for 18 years. Especially when they know I've not been taking my meds, and made is extremely clear to them. After a nice long tearful chat with my dietician, who i swear would make a superb psychiatrist. She made me realise skipping meds isn't hurting them, it'shurting me. Which is obvious in my liver results.

There now starting to rule out meds which will makemy cpk levels rise. I think one of the reasons i stopped taking my meds was because i was sick of been guinea pig'd to see what medication brought my cpk levels up. I see now though that not takingthe meds is just effecting my liver, which is even worse than it affecting my muscles i suppose.

Also, now not sure on actual infection status, or how bad it is. They did some discussing after id gone yesterday, about why my lungs were hurting. My blows were down, but not enough for there to be a drastic infection present,and lungs showed up quite clear. It now seems my cpk levels aren't just attacking my muscles in arms and legs, but actually starting to effect muscles in chest. While there's definately still an infection floating somewhere, and starting to erupt, it hasn't done yet. Gonna have fluclox regardless, and hope there's an improvement in my liver results when i start taking urso. And hopefully should be able to kick the infection down, so won't even need to consider IV's.

Starting on skandishakes now, to hopefully get me too eat again. The loss of 8kg in a couple of weeks scares me. While it's the weight i wanted to get too, it's not been done healthily, but through not being able to eat, and it's left me still big bellied, but almost no fat in my ribs or face,and i look stupid.

Oh, and while my CPK levels have gone back down to the normal overly high level for me. It's put lots of pressure on my poor little muscles. I am as weak as a pancake.
Levels supposed to be at 15-200. Mine were at 14,000,there now at 3,800 soamajor drop, which reallyi should be happy about. But just not.