Message Boards for the CF Trust

Replies: 3 Pages: 1

SarahW

Posts: 6
From: Havant, Hants
Registered: 30-Nov-2006

New d/nase user: any tips?
Posted: 07-Dec-2006 18:14

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Hi. Liam (5)has just been started on d/nase as a trial due to his persistent cough and has only just finished course of IV's. His cough is still a 'bark' rather than 'fruity' but hoping he has a clearance problem that d/nase can help with. Only started it 2 days ago. Any regular users with some tips of what to expect - or not?!!
Thanks

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: New d/nase user: any tips?
Posted: 07-Dec-2006 18:42

Reply

Hi Sarah, my son is 20 and only started DNase in july, sorry but we have noticed no difference as to yet, his lung function was up at last clinic don't know if that is cuz of DNase, but im sure it takes a little longer for it to have any affect

tracie

Posts: 148
From: west midlands
Registered: 06-Nov-2006

Re: New d/nase user: any tips?
Posted: 07-Dec-2006 18:45

Reply

P.S. sorry he did experience a sore throat after about a month but it didn't last long, he has also had quite a bad mouth ulcer that will not go, but not sure if this is down to Dnase, (sore throat was we were told to expect it)

Dawn

Posts: 29
From: Worcestershire
Registered: 06-Nov-2006

Re: New d/nase user: any tips?
Posted: 07-Dec-2006 18:51

Reply

my daughter started dnase almost 5 years ago. Her lung function went from 54% to 98% in 3 weeks! But now her lung function is back to 68%

Your son may sound a bit hoarse from taking dnase for the first week. I dont know if is the fact that my daughter (19) has Aspergillosis, Pseudomonus and asthma too that her lung function has dropped. I expect your Sonsultant will tell you it works better for some than others!