Welfare Grants

The Cystic Fibrosis Trust is able to help families and CF adults in many ways including offering financial help and advice (see Guide to Financial Help below) and through its own small grants scheme for those experiencing particular difficulty at a time of stress or crisis relating to Cystic Fibrosis.

Most areas of need will be considered however our funds are limited and so we are unable to help with debts or ongoing expenses (such as driving lessons or the cost of running a car) or with major projects such as home improvements/maintenance or purchasing a car.

We will do our best to meet requests unlikely to be considered by any other organisation, for example:

• Assistance to purchase household items directly relating to Cystic Fibrosis
• Providing help with the cost of a necessary break after a period of stress or crisis
• Paying for help in the home which may mean keeping the person with CF out of hospital
• Financial assistance for those setting up home for the first time
• Help with costs during hospitalisation
• Funding a young adult's first annual prescription prepayment certificate
• Help with funeral costs

Application forms can be downloaded from here:

Applications for Welfare Grant
Application for Funeral Expenses

or obtained from your hospital or by contacting the
Welfare Grants Officer 0845 859 1020.

Edward W Joseph CF Home Care Programme
Guidelines for Welfare Grants

You can also read our Guide to Financial Help Factsheet in the publications library.

GRANTS FOR MODERN NEBULISERS
If you are using an old fashioned nebuliser and would appreciate a more modern version, you should ask you CF team if they can provide you with one.

It is really down to the NHS to make sure you have modern, portable nebulisers, which take far less time to use than the old ones.

If your team agree that you would benefit from an e-flow nebuliser, for example, but they are not able to provide you with one because of financial limitations, the CF Trust may be able to help.

We have a small amount of funding from company donors specifically for nebulisers. To be considered, you need to complete a Welfare Grant application form, which can be downloaded from this page or posted to you on request. This form should then be endorsed on the last page by a member of your CF care team saying that you would benefit from a more modern nebuliser, but they are unable to provide one at present.

We'll then help if we can, although funds are limited.

Applications or enquiries should be made to:
Welfare Grants Officer, Cystic Fibrosis Trust, 11 London Road, Bromley, BR1 1BY
or by email to the Welfare Grants Officer
Welfare Grants Helpline: 0845 859 1020

THE JOSEPH LEVY MEMORIAL TRUST
This fund was established following a bequest by the late Joseph Levy, co-founder of the CF Trust. The aim of the fund is to assist young adults with Cystic Fibrosis to develop their careers by way of Further or University Education or in pursuance of other professional qualifications.

Grants will be considered to cover the cost of tuition, living expenses, examination fees or other costs of a similar nature which are required to assist the applicant to progress their career.

Individuals who feel that they may have circumstances which fit the above criteria, and are aged 18 or over, should write in confidence to Mr Peter Levy OBE, 1st Floor, Pegasus House, 37/43 Sackville Street, London W1X 2DL. Alternatively, telephone 020 7333 8118 to speak to Mrs Elizabeth Neville, email: Elizabeth.Neville@shaftesbury.co.uk.

The deadline for applications 31 March: awards are decided in mid-June.

CYSTIC FIBROSIS HOLIDAY FUND
This charity provides financial assistance for children and young adults with CF up to the age of 25 to enable them to have an invaluable break. Family holidays are encouraged although diverse programmes such as a dream day out are also considered.

Application forms can be obtained from CF Holiday Fund, 6 Camden High Street, London NW1 0JH or by telephoning: 020 7874 7208, Email: info@cf-holidayfund.org.uk. They also have a website: www.cf-holidayfund.org.uk.

All applications are assessed by a medical panel who meet quarterly.