We know that CF can be an isolating condition, with cross-infection issues making it impossible for people with CF to come together. It can be tough for their parents too, which is why, in addition to our online Forum <hyperlink to Forum> we run an annual Parents Conference.

As well as bringing together parents from across the country to share their experiences, the conference provides an update on some of the key issues in CF care, treatment, research and management and on the work of the Trust.

At our 2011 conference, we were delighted to have Rob Law, the man behind Trunki children's suitcases, as one of our guest speakers. In an inspirational and moving speech, Rob told parents how his CF has driven him to live life to the full.

Details of the 2012 conference will be available soon.