Rosie Barnes, then Chief Executive of the Cystic Fibrosis Trust, and Oli Lewington, who has CF and is on oxygen, met with representatives of the Department of Health who were overseeing the home oxygen service to raise some of the concerns that had been brought to our attention by people with CF on oxygen. There followed a constructive discussion where all parties agreed things needed to improve. The main areas of concern were difficulty in getting through on the telephone, the lack of courtesy and good customer service from some of the service contractors, an inability on their part to deliver appropriate amounts of oxygen in the right form with particular difficulties in relation to liquid or portable oxygen and problems with tubing and connections. We were informed that these would all be addressed and there have been considerable improvements since the meeting.

Here you can read a more detailed account of the meeting.