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What is Cystic Fibrosis?

  • Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
  • Cystic Fibrosis affects over 8,500 people in the UK.
  • Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
  • If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
  • Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
  • Each week, five babies are born with Cystic Fibrosis.
  • Each week, three young lives are lost to Cystic Fibrosis.
  • Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.